News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

Cork City Marathon relay event 2019

The Cork City Marathon relay event will take place on Sunday 2nd June and we're so excited!!! ILFA has six teams taking part and we're delighted to introduce them to you with short pieces written by the team captains.

Team ILFA 1 was put together to raise awareness of the pulmonary fibrosis patient's journey. The team members are the inspirational David Crosby who was diagnosed with Idiopathic Pulmonary Fibrosis and received a double lung transplant in 2016. David has since completed 3 full marathons, New York City Marathon, Berlin Marathon and London Marathon and has his sights set on Tokyo, Boston and Chicage to join the 'Super Six' marathon club. Joining David for the Cork marathon relay event are his respiratory consultant - Dr Oisin O'Connell, his respiratory nurse specialist - Lynn Fox, his transplant surgeon - Professor David Healy and ILFA volunteer - Nicola Cassidy.

'WELL WISHERS WALKERS' is captained by Stephen Cassidy and here's what he had to say; "My father Eddie (ILFA Chairman) and aunty Annette Grehan are on the team. Both have run numerous marathons before in their day. I completed a Dublin City Marathon before and said "never again" but the relay system is a great idea and my sister Nicola is very persuasive. We will take part in memory of my mam Denise Cassidy.
We will also be joined by our new friends, two nurses from South Tipperary General Hospital in Clonmel; Nora McNamara and Betsy Matthews who will take part in support of lung fibrosis patients. We're all looking forward to meeting each other and hopefully enjoying race day.”

TEAM BOC is being led by Adrian Sheehan, team captain. Adrian said “Just to give some background as to why we're taking part in the relay section of the upcoming Cork Marathon; we are running for a very worthwhile charity the 'Irish Lung Fibrosis Association'. This organisation gives fabulous support to patients nationwide who are suffering from fibrosis of the lungs. The main objective here is to gain exposure and awareness of the organisation so people can get support and information for those in similar circumstances”.  The team members are Adrian Sheehan, Keith McGrath, Michael Creedon, Mick Dooley and Kieran Hamill.

TEAM ROCHE is made up of five work colleagues from Roche Products Ireland. Triona Rice is the team captain and said "Team Roche is absolutely delighted to help raise awareness and much-needed funds for a great cause in Idiopathic Pulmonary Fibrosis. Anything we can do to help this amazing cause is our pleasure and responsibility - even if the thoughts of a marathon is a very scary prospect!". Team members are Triona Rice, Simone Feresin, Gillian Hession, Ronan Butler and Joe Gleeson. 

SOUL SISTERS is the name of the team captained by the amazing Katie Daly Crosby Here's a beautiful piece from Katie... "I am taking part in the Cork relay marathon with my t!hree sisters Teresa, Deirdre and Bridget for #TeamILFA to help raise awareness of Lung Fibrosis. My husband David at 40 years of age was diagnosed with Idiopathic Pulmonary Fibrosis in 2015. Thankfully he received a life-saving double lung transplant six months later. This devastating disease took an enormous toll on our family and our three young children. David received huge support from family and friends around us. In order to maintain a somewhat stable environment for our children, our families and friends stepped in to keep things running smoothly for them as David and I navigated our way through everything that IPF brought to our door. From numerous doctor and hospital appointments, adjusting our lives to a life of oxygen and medication, trying to remain hopeful that a transplant would save David's life.

I'm also running this marathon with my sisters to give recognition to every carer, who is there for their loved ones and for everybody who helps and supports them along the way. Without our families and friends I would not have been able to remain as strong as I needed to be to get through a really difficult and life changing time in my life. Go #TeamILFA ! 

We would be grateful for your support. You can donate at 


https://cork-city-marathon-2019.everydayhero.com/…/ILFATeam…

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https://give.everydayhero.com/ie/the-greatness-within-1