News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

2018 … ILFA's year in review

Every year seems to get busier and without doubt 2018 was no exception. It was another whirlwind year that kicked off with many brave swimmers taking to the Irish Sea for the annual ILFA swim on 1st January 2018 and as fate (and the coastal tides!) would have it, our last fundraising event of the year was another swim in Sandymount, Dublin on 27th December 2018. 

Now as we welcome 2019 and are busy preparing for an exciting and eventful year head, it’s a perfect time to reflect on some of the best moments from 2018 and highlight all that we’ve accomplished together.

Firstly, we must extend our warmest thanks to everyone who supported ILFA in 2018, particularly our amazing fundraisers and volunteers for their wonderful enthusiasm, creativity and hard work. What incredible individuals! It is thanks to the exceptional support, generosity and goodwill of all our fundraisers, event organisers and corporate donors that we can continue our work supporting patients and families living with pulmonary fibrosis.

Some of the outstanding fundraising events in 2018 included the annual ILFA Swim, the women’s mini-marathons in Dublin and Cork, the Dublin half-marathon, Cork marathon, Berlin marathon, Tri-Athy triathlon, St Patrick’s Day sponsored walk, Croagh Patrick climb, Tullamore Angling competition, the Pat Casey Memorial Cycle, the Margaret Maloney Darts Tournament, Team O’Brien walks in Kerry and Boston, Ballybunion Tug O’ War, table quizzes and musical bingo nights, wedding favours, donations in lieu of funeral flowers, the Santa Dash run, ILFA Christmas cards campaign, and the wonderful honour of being the recipient charity for the Easy Riders Charity Cycle, Musgraves Charity Cycle and the West Kerry Tractor Run fundraising campaigns. Thank you all! We are humbled by your hard work on our behalf.

With your help, in 2018 ILFA
- provided free educational materials, and exercise and practical information resources to patients and healthcare professionals working in hospitals and hospices around the country
- produced 3 newsletters describing ILFA's activities, news and events
- held 2 patient information days - one in Kilkenny and one in Dublin
- held our annual Ecumenical Service of Prayer and Remembrance in October at the Rathgar Methodist Church, Dublin
- held an information stand at the National Ploughing Championship in Screggan in September with the help of exceptional volunteers
- held the Fergus Goodbody Memorial Lecture for healthcare professionals in March
- Awarded educational bursaries to 9 healthcare professionals to attend the Interstitial Lung Disease International Disciplinary Network conference in October
- Held a World Café event with 55 stakeholders to establish priorities for palliative care and planning for the future with IPF   

Awareness and advocacy activities included;
- increasing the number of our Facebook 'friends' to over 3650 people and twitter followers to over 530 which has helped raise more awareness among the general public
- The ‘Fight IPF’ campaign and TV 3 appearance by Noreen O’Carroll and Dr Killian Hurley
- Nicola Cassidy gave a presentation at the ILD Nurse Study Day in Limerick
- hosting an information stand at the Irish Thoracic Society annual meeting in Belfast
- Nicola Cassidy gave 2 poster presentations at the Irish Thoracic Society
- Liam Galvin attended the European Respiratory Society Congress in Paris and continued his work for the EU-IPF Foundation
- corresponding with Ministers Simon Harris (Minister for Health), Finian McGrath (Minister of State with special responsibility for disability) and Catherine Byrne (Minister of State with special responsibility for health promotion) and meeting with Department of Health Officials to lobby for progress on the introduction of an opt-out system for organ donation
- working with the Respiratory Therapies Group of the HSE National Reform Programme for Community Funded Scheme to progress the new oxygen contracts

Finally, three significant highlights of the year for ILFA included (1) the invitation to Áras an Uachtaráin to meet President Michael D Higgins and his wife Sabina Higgins on St Patrick’s Day in recognition of our work on organ donation and transplantation, (2) the ‘ILFA 15’ special edition magazine commemorating ILFA’s 15th anniversary receiving a commendation award at the Irish Healthcare Awards in October and (3) the launch of the Irish Thoracic Society's Position Statement on Idiopathic Pulmonary Fibrosis and the National IPF Registry.

Thank you once again for all your support. We simply wouldn’t be able to carry on our work and make plans without you, so we are enormously grateful to you for moving and motivating us every day.

Wishing you every happiness and health for 2019.