News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

Tip of the week 

1)  Keep a diary for 2019
If you're thinking about a new year’s resolution, why not commit to keeping a diary for 2018? A diary is very useful for recording all your appointments, correspondence, and things you need to do. Its also worthwhile to keep a record of your general health and wellbeing. Write down how you’re feeling, your symptoms and how you are coping with your daily challenges and triumphs including your progress with taking exercise and reaching your daily step count. Happy New Year from the Irish Lung Fibrosis Association (ILFA Ireland)!

 

2)   Be informed
ILFA has a range of specially developed resources to help patients, their care givers and families learn more about living with lung fibrosis. We have written materials including leaflets and newsletters, the Medical Alert Card and the STALL breathing technique card, on-line videos and information (www.ilfa.ie) and the 2000 Steps a Day exercise pack for patients. Email info@ilfa.ie or call 086 057 0310 to order items.

 

3)  Take notes
When going to your hospital appointment, bring a notebook and pen with you and write down anything that will help you remember what your doctor or nurse said during your visit.
For more information about getting the most out of your hospital appointments, see the ILFA leaflet.
www.ilfa.ie/docs/ILFAHospitalApptsfinal.pdf

 

4) Stair advice. Climbing stairs can be a real challenge for lung fibrosis patients and the effort often results in extreme breathlessness. You don't have to dread the stairs if you take things slowly. Its a good idea to stop half-way up the stairs to catch your breath. Why not put a favourite photo or picture on the wall at the half-way point so you can stop and admire it before taking on the rest of the challenge. Remember to always hold on to the rail or bannisters for extra support.