News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

2017 - ILFA's year in review


2017 was a year of many different emotions for everyone at ILFA. Our esteemed Chairman of 15 years, Terence Moran, passed away suddenly in August and we continue to experience an enormous sense of loss. Terence had guided us expertly from 2002 to 2017 and was excited to mark ILFA Ireland's 15th year anniversary with the production of our special edition magazine. The 'ILFA 15' magazine was launched during IPF World and celebrates the advances in IPF care since ILFA was founded. The magazine is dedicated to Terence Moran's memory.

2017 was an incredibly busy year for ILFA. Thank you to all of you for your support. We are hugely grateful all our amazing fundraisers, supporters, donors, ambassadors and patient champions whose enthusiasm, determination and dedication have helped ILFA to continue to support patients and families affected by lung fibrosis. Our fundraisers hard work has enabled ILFA to provide free educational materials, and exercise and practical resources to patients and healthcare professionals in hospitals and hospices around the country. We have also been able to raise awareness of lung fibrosis locally, nationally and internationally. ILFA is extremely grateful to Gemma O'Dowd for all her hard work for ILFA.

With your help, this year, ILFA
- produced a special edition magazine entitled 'ILFA 15' to celebrate ILFA's 15th year anniversary.
- produced 3 newsletters describing ILFA's activities, news and events.
- updated the "Treatment for IPF" leaflet
- reprinted many of our patient information resources and provided these free of charge to patients and healthcare professionals around the country
- held 2 patient information days - one in Sligo and one in Dublin
- held our annual Ecumenical Service of Prayer and Remembrance in October in Our Lady of Mount Carmel Whitefriar Street Church, Dublin
- held an information stand at the National Ploughing Championship in Screggan in September
- held the Fergus Goodbody Memorial Lecture for healthcare professionals
- organised a lunch for support group members in Limerick
- supported fundraisers
- increased the number of our Facebook 'friends' to over 3350 people (almost 30% increase since 2016) and this has helped raise more awareness among the general public

Awareness activities included;
- ILFA hosting a stand the Irish Respiratory Nurses Conference in Dublin
- presentation at the ILD Study Day in Dublin
- Nicola Cassidy and Liam Galvin attended the European Respiratory Society Congress in Milan. Nicola presented the results of ILFA's work at two poster discussions.
- Liam Galvin carried out incredible work for the EU-IPF Foundation and attended many international meetings
- David Crosby was interviewed on the RTE News and appeared on The Today Show following his successful New York City Marathon triumph 18 months after receiving a double lung transplant for IPF. David took part with a team of 14 runners
- ILFA delegates attended the Interstitial Lung Disease Inter-Disciplinary Network in Birmingham and awarded educational bursaries to 4 allied healthcare professionals to also attend.
- Nicola Cassidy and Liam Galvin were invited to speak at the Advances in IPF Research (AIR) conference in Barcelona to an audience of specialist doctors and healthcare professionals
- Peter Gallagher and Eddie Cassidy were interviewed by Near FM radio
- ILFA worked with our PR company to raise awareness during IPF World Week
- ILFA held an information stand at the Irish Thoracic Society annual meeting in Limerick and Nicola Cassidy delivered 2 poster presentations.

ILFA's Lobbying activities consisted of;
- meeting with Ministers Simon Harris (Minister for Health) and Finian McGrath (Minister of State with special responsibility for disability) to discuss important issues in relation to the challenges of living with IPF and organ donation
- made a submission to the Human Tissue Bill Public Consultation on the introduction of an opt-out system for organ donation

And, last but not least ... The National Patient Charter for Idiopathic Pulmonary Fibrosis won a Plain English Award in February. The charter was the overall winner of the 'Best Patient Information Leaflet' category.

Sincere thanks to all of you for all your support. in 2017
Here's looking forward to 2018.