News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

How funds are spent

Irish Lung Fibrosis Association

  • ILFA was established in 2002 in memory of Fergus Goodbody. Our committee is made up of volunteers who have all been touched by Lung Fibrosis in some way. Our patrons are Michael Darragh Macauley, Feargal Quinn, Charlie Bird and Andrea Corr.  
  • The aims of ILFA are to support Research, Education, and Support. 
  • All of our finance comes from fundraising by our supporters and donations. All money raised goes towards meeting our aims and helping the patients and families of those affected by Lung Fibrosis. 
  • ILFA funds an Administrative Assistant to help with the day-to-day business of running the charity and answering telephone and email enquiries.
  • ILFA holds two Patient Information Days annually, one in Dublin and one at another location. Invited speakers give presentations to patients and their families about the medical, social, and practical aspects of living with Lung Fibrosis. The Patient Information Days are a valuable opportunity for patients with Lung Fibrosis and their families to meet with each other. Light refreshments are provided for those in attendance. The evets are advertised in the local and national press. 
  • The Inaugural Fergus Goodbody Lecture was held in 2010 and an international expert in Respiratory Medicine was invited to Dublin to present a lecture on recent advances in Lung Fibrosis to medical, nursing, allied healthcare professionals and research staff. This important educational activitiy has become a regular event for ILFA and takes place every 2 years. 
  • ILFA produces several publications including three ILFA Newsletters per year, the Directory of Services for Lung Fibrosis, and Patient Information Leaflets. 
  • ILFA provides exercise resources and practical living aids to patients, respiratory nurses and physiotherapists free of charge.
  • From time to time, ILFA has commissioned a market research questionnaire on the preferred donor transplant options (i.e. an opt-out system or an opt-in-system) of members of the public. 
  • In 2013 ILFA launched the 2000 Steps Day Exercise programme for IPF patients. Patients are provided with a free walking pack and medical grade pedometer to encourage them to sign up to the programme. 
  • In 2015, ILFA produced an Exercise DVD for Lung Fibrosis Patients. This is provided free of charge to patients.
  • Other funds go toward the upkeep and management of the ILFA website www.ilfa.ie 
  • ILFA engage the services of a PR company when required.
  • ILFA is registered with www.everydayhero.ie for on-line donations and this involves an annual charge.  
  • ILFA supply merchandise including t-shirts, vests, and balloons and other promotional items to fundraisers. 
  • Day-to-day running costs include telephone bills, postage, printing costs, insurance, and sundries.