News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

NEWS and EVENTS

 

ILFA Newsletter Spring 2021

The Spring edition of the ILFA newsletter is available to read here.

We hope you enjoy reading it.

If you would like to be added to the ILFA database to receive the newsletter by post please register via the website, call Gemma on 086  871 5264 or email info@ilfa.ie

 

 

2000 Steps Extra for ILFA at Easter


The Irish Lung Fibrosis Association (ILFA)'s "Easter Monday 2000 Steps Extra for ILFA" will take place virtually on Monday 5th April. We want patients, carers, family members, healthcare professionals, industry supporters to exercise and take an extra 2000 steps (approximately 1 mile) more than their regular daily step count to raise awareness of pulmonary fibrosis and raise funds to support ILFA's work.

You can take part from anywhere - in your garden, indoors from your house and within 5km of your home while following public health guidance. The important goal is to step it out for health!

Remember to take a photo and log your step count with us! We'll have fun counting the total steps taken to see how far we reach!

Contact ILFA on 086 871 5264 or email info@ilfa.ie for more information.

Donate securely online here: https://bit.ly/3cQkGHz

or via Facebook https://www.facebook.com/donate/909831699764531/6015826088443518

 

 

New Infographics to explain Idiopathic Pulmonary Fibrosis (IPF)

ILFA has a new set of infographics to help raise awareness of what Idiopathic Pulonary Fibrosis (IPF) is, the signs and symptoms of IPF and the treatment of IPF. Click the link to expand the image.

What is IPF?

The signs and symptoms of IPF

The treatment of IPF

 

 
 
 

     

World Café Workshop on Pulmonary Fibrosis

An online World Café-style workshop with patients, carers, family members, healthcare professionals and industry representatives will take place via Zoom on Saturday 17th April for approximately 3 hours.

The workshop will allow stakeholders to share ideas on how to address the needs and priorities of the pulmonary fibrosis community. We want to gather this data to help us campaign for a dedicated Clinical Care Programme for Lung Fibrosis. Such programmes exist for other serious health conditions and have dedicated health funding. A structured clinical care programme with a standard model of care is needed to meet the healthcare needs of our patients. It is even more relevant now, as it is anticipated that there may be an increase in the incidence of pulmonary fibrosis from COVID-19 infection.

If you would like to take part in the online ILFA World Café, please register your expression of interest by emailing info@ilfa.ie or calling 086 871 5264.

This event is made possible thanks to funding from the Community Foundation of Ireland and RTE Does Comic Relief.

 

Sing Strong for Pulmonary Fibrosis

ILFA is delighted to announce a new online Sing Strong for Pulmonary Fibrosis online class for patients and carers. A 12-week pilot programme will be delivered once a week by Ciara Meade (Choir Mistress) and her colleague Roisin Calahan (physiotherapist) will assist. Classes will start at the end of April and will last approximately 60-70 minutes each.

Research has shown that singing for lung health classes that are delivered by a trained specialist provided valuable psychological and social benefits to people living with respiratory conditions. Some of the benefits include
- improvement breathing control
- better management of breathlessness
- improved posture
- relief of anxiety
- fun, enjoyment and social interaction

You do not need to be a good singer or have singing experience. The classes will take place online and everyone will sing (muted) from the comfort of their home, while training and exercising their breathing muscles under the expert guidance of a choir mistress.

This activity is supported with funding from Air Liquide Healthcare Ireland and BOC Healthcare Ireland. We are enormously grateful for their kind support.

Please contact ILFA on 086 871 5264 or email info@ilfa.ie to register.

 

ILFA’s Weekly Virtual Exercise Classes

ILFA’s Virtual Exercise Class for lung fibrosis patients takes place every Monday and Thursday 11am via Zoom.

The clasess are led by Gordon Cagney (Senior Respiratory Physiotherapist) at University Hospital Limerick and you can join in from the comfort of your home.

Call 086 871 5264 or email info@ilfa.ie to register in advance to join the class.

Physiotherapy students at University Hospital Limerick recorded this exercise video to help patients who want to exercise more regularly between classes.

 

Instructions for using Zoom to join ILFA's online meetings

 Click the link for instructions on how to use Zoom to join online meetings and events hosted by ILFA.

Remember to register in advance to join us for our online events and activities.

Call 086 871 5264 or email info@ilfa.ie

 

Patient Information Day 27th February 2021

Here is the recording of the ILFA Patient Information Day that took place on Saturday 27th February 2021.

Sincere thanks to our speakers for excellent presentations and to Justin Dawson for providing the technical expertise to deliver this event.

https://youtu.be/IHwRwAN8V-c

 

 

"Let's Talk ... Singing for Lung Health" 

"Let's Talk ... Singing for Lung Health" will take place on Wednesday 24th March at 3pm with Ciara Meade, Choir Mistress with Sing Strong.

Join us to learn more about the health benefits of singing for lung health and breathing.

We will also discuss the launch of a new virtual pilot programme on singing for lung fibrosis patients starting in April 2021.

Please register in advance by calling ILFA on 086 871 5264 or emailing info@ilfa.ie

 

 

 

ILFA Survey on the impact of Covid-19 in 2021

Please take the 2021 ILFA Research Survey via the following link http://bit.ly/ilfaweb or by calling 021 245 5070
 
Last year ILFA conducted a research survey to better understand the personal challenges faced by our members; patients, carers, healthcare professionals and other stakeholders during the first wave of the pandemic. We received over 200 responses and are grateful to everyone who took part.
 
This year, we are conducting a survey to understand how you are managing in Wave 3 of the pandemic. We would be very grateful for your input if you are a patient, carer, family member, lung transplant recipient previously diagnosed with IPF or a healthcare professionals working in respiratory medicine.

Closing date 9th March 2021

 

Online Patient Information Day, Saturday 27th February 2021

The next ILFA Patient Information Day will take place online via Zoom on Saturday 27th February at 11am.

Speakers for the event are;

- Dr Kate O’Reilly, Respiratory Consultant, Mater Misericordiae Hospital

- Professor Bernard Mahon, Professor of Immunology, Maynooth University

- Professor Simon Walsh, Consultant Radiologist, National Heart & Lung Institute, Imperial College, London

- Paula Ryan, Respiratory Advanced Nurse Practitioner, University Hospital Limerick

- Gordon Cagney, Physiotherapist, University Hospital Limerick

- Moya Brennan, Singer, composer and musician

Please register in advance using this link http://bit.ly/3jqmLf3 or alternatively contact Gemma by telephone on 086 871 5264 or email info@ilfa.ie for this free event.

 

COVID-19 Vaccine Allocation Strategy

In March 2021, ILFA was invited to join an online Stakeholder Briefing meeting for an update on the COVID-19 Vaccine Allocation Strategy with Minister Stephen Donnelly, Professor Karina Butler (Chair of the National Immunisation Advisory Committee), HSE staff and other patient organisations. We were grateful to hear the rationale for the prioritisation strategy and to have the opportunity to submit questions to the experts. The meeting was valuable and informative.
 
The development of effective COVID-19 vaccines in such a short time represents major progress in response to the pandemic. The evolving real world experience of large populations being effectively vaccinated has resulted in a decrease in COVID-19 hospitalisation rates. While this is hugely encouraging and reassuring, we all need to continue to follow public health guidance and adhere to social distancing and hand hygiene measures to ensure we stay safe.
 
As vaccine supply is currently limited, there is a need to prioritise those groups at greatest risk of illness, hospitalisation and death due to the coronavirus. The National Immunisation Advisory Committee has issued the updated COVID-19 Vaccine Allocation Strategy based on evidence and an ethical framework to ensure fairness and equity in deciding who should get the vaccine first.
 
The plan is to target vulnerable groups considered to be most at risk and keep them safe. Patients aged 16-69 years with severe pulmonary fibrosis are included in Cohort 4 and will receive the vaccine directly after those aged over 70 years. ILFA submitted a question regarding the definition of "severe" pulmonary fibrosis as mentioned in the allocation strategy and highlighted the risk of an acute exacerbation for pulmonary fibrosis patients. We await clarification and will update you when possible.
 
We also asked if carers/spouses of pulmonary fibrosis patients would be prioritised for the vaccine. At this time, priority is given to pulmonary fibrosis patients and other high risk patients. As the vaccine supply increases, caregivers will be called for vaccinations.
 
The HSE will be responsible for the implementation of the vaccines (how, when, where). The priority list is under constant review.
 
You can read more on the Allocation Strategy on gov.ie/covid19vaccine

 

New ILFA Information Leaflet on Telemedicine 

We are delighted to share our new information leaflet on Telemedicine with you.

Telemedicine is the use of technology by a healthcare professional to provide medical services and healthcare. It includes telephone and video consultations (appointments) with a doctor or nurse, and even things like online pulmonary rehabilitation classes with a physiotherapist.

Knowing how to use telemedicine will help you to continue to receive your healthcare safely from a distance. Click the link below to read our new information leaflet. We hope you will find the information useful.

Telemedicine: Telephone and Video Consultations 

 

 

'Let's Talk ... The Role of Palliative Care in Idiopathic Pulmonary Fibrosis'

'Let's Talk ... The Role of Palliative Care in Idiopathic Pulmonary Fibrosis' will take place online on Friday 19th February at 2pm.

Palliative care is about maximising your quality of life through symptom management. Our guest speaker is Dr Paul Gregan from Our Lady's Hospice in Dublin.

Register in advance by calling 086 871 5264 or emailing info@ilfa.ie

 

 

Instructions for joining an ILFA online/virtual meeting using Zoom

ILFA uses an online platform called Zoom to host our online meetings.

If you would like to join any of the online activities organised by ILFA, click here for the instructions to help you get started.

It is relatively simple to join the meeting using Zoom but please ask a friend or family member to help you if you are new to this technology.

You can also call Gemma on 086 871 5264 or email info@ilfa.ie if help is needed.


 

"Songs I like to Sing" by Mike Joe Fitzgerald

As a young person living in Lispole, Co Kerry, while attending national school Mike Joe loved singing. An early ambition was to sing with and lead a band. Over the years he continued singing and always in the back of his mind was his dream and lifetime ambition to make a CD.

In 2020 Mike Joe decided it's ‘Now or Never’ and so he chose the year of Covid-19 to produce his CD and thankfully, with the support and encouragement of his team, he achieved his dream. Delighted to have completed the recording of 15 of his favourite songs, Mike Joe now wants to use his music and CD to help two charities.

JP O’Sullivan, ‘a rogue and gentleman’, from Lispole, a special and lifetime friend of Mike Joe, who he says ‘‘never does what he is told’, as a result, he wants to share the proceeds of his CD to support his chosen charities;

Firstly - ILFA, due to their great work and support as a patient organisation for those living with Pulmonary Fibrosis.
JP has shown great dedication to ILFA for the help and support they gave him and other patients and
families with pulmonary fibrosis. Mike Joe has travelled JP’s journey with him.

Secondly - the Kerry Cancer Support Group for the great work they do in Kerry for cancer patients and because Mike Joe is a Kerryman after all.

Congratulations to Mike Joe on achieving his ambition and warmest thanks to Mike Joe and his pal JP O'Sullivan for fundraising for ILFA and supporting our work. To order your CD or to make a donation, please contact ILFA on 086 871 5264 or JP O'Sullivan on 087 280 9801


ILFA Patient Information Day Video

The second virtual Patient Information of 2020 took place on 28th November via Zoom.

We are very grateful to our speakers Dr Michael Henry, Respiratory Consultant at Cork University Hospital, Carmel McInerney, Advanced Nurse Practitioner at Ennis Hospital, Debbie Gibbons, Palliative Care Physiotherapist at St Francis Hospice, and Sandra Murphy, Dietitian at the Mater Misericoridae University Hospital in Dublin, and Laura Grehan and Gerry Redican who achieved great fundraising success for ILFA in 2020.

 

Let's Talk Christmas

Let's Talk Christmas! The ILFA Christmas Jumper Support Group Meeting will take place on Friday 11th December at 4pm.

Our special guest will be Irene Byrne, Respiratory Physiotherapist at the Mater University Hospital.

Why not put on your festive Christmas jumper (the louder the better!), find a Christmas hat, organise a cuppa or a tipple and join us for some virtual mince pies!
 
All are welcome!

To register, call Gemma on 086 871 5264 or email info@ilfa.ie

 

 

Let's Talk Medications

ILFA's next Let's Talk online support group meeting will take place on Tuesday 8th December at 2pm via Zoom.

Our invited guest speaker is Advanced Nurse Practitioner Lynn Fox, Mater Misericordiae University Hospital.

Register in advance by emailing info@ilfa.ie or calling 086 871 5264

 

ILFA COVID-19 Stakeholder Survey

In April-May, ILFA conducted a research survey on the impact of COVID-19 on patients, caregivers and healthcare professionals.

We had a great response with over 200 people sharing their experiences with us. The survey results have been incorporated into infographics and can be accessed here.

 

 

ILFA Christmas Cards now on sale

We're delighted to share our 2020 Christmas card designs with you and let you know that the cards are now available to order.
 
Each pack contains 10 cards - 2 cards each of 5 designs. One pack costs €6 and two packs cost €10.
For a limited time, we will give 5 packs for the price of 4!!!
 
Please help raise awareness of lung fibrosis this festive season.
 
Call 086 871 5264 or email info@ilfa.ie to place your order.
 
 
 
 

Let's Talk Christmas!

Let's Talk Christmas! The ILFA Christmas Jumper Support Group Meeting will take place online on Friday 11th December at 4pm.

Our special guest will be Irene Byrne, Respiratory Physiotherapist at the Mater University Hospital.

Why not put on your festive Christmas jumper (the louder the better!), find a Christmas hat, organise a cuppa or a tipple and join us for some virtual mince pies!


To register, call Gemma on 086 871 5264 or email info@ilfa.ie

Please let us know if you have a festive party piece that you would like to perform via Zoom.

 
 
 

 

COVID-19 & Pulmonary Fibrosis Webinar

The European IPF and Related Disorders Federation will host a webinar on COVID-19 and Pulmonary Fibrosis on Tuesday 1st Decemeber at 6pm GMT.
 
The invited speaker is Professor Gisli Jenkins, a global leader in IPF research.
 
 

 

ILFA Newsletter

The Winter edition of the ILFA Ireland newsletter is also available to read online.

Thank you to everyone who helped make this newsletter possible! We hope you enjoy reading it.
 
If you would like to receive a copy by post, please join our mailing list.

 
 

Patient Information Day (online)

The next ILFA Patient Information Day will take place online on Saturday 28th November from 11am until 1pm.
The meeting will take place using the Zoom online platform.
 
Our speakers will include
 
- Dr Michael Henry, Respiratory Consultant at Cork University Hospital, Cork
- Carmel McInerney, Respiratory Nurse Specialist at Ennis Hospital, Clare
- Debbie Gibbons, Respiratory Physiotherapist at St Francis Hospice, Dublin
- Sandra Murphy, Dietitian at the Mater Misericoridae University Hospital, Dublin
 
We hope you can join us to learn more about pulmonary fibrosis from experts in the field.
Alternatively call 086 871 5264 or email info@ilfa.ie to register for this free online event.
 
 
 

ILFA joins Care Alliance Ireland

The Irish Lung Fibrosis Association is delighted to have been accepted as a member of Care Alliance Ireland -a national network of voluntary organisations supporting family carers. The alliance aims to raise awareness & ensure the role of family carers is fully recognised and valued by society in Ireland.
See www.carealliance.ie for more information.
 
 

ILFA's Online Patient Information Day, July 2020

 

 

CBT Educational Bursaries for Healthcare Professionals

Calling all healthcare professionals ... the Irish Lung Fibrosis Association (ILFA Ireland) is pleased to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT). The course will be delivered online (January 2021) and will require a minimum commitment of 15 hours e-learning & 10 hours participatory (Teams & skills practice) online sessions.
The course will cover;
* CBT theory
* Assessing patients using the CBT model
* Cognitive and behavioural techniques
* Case study practice and presentations
After completing this course, you should be able to:
1. Understand the basics of CBT
2. Understand why CBT is useful for the treatment of depression and anxiety
3. Identify patients under psychological distress
4. Use basic CBT skills and techniques to help address psychological distress.
Please email info@ilfa.ie for an application form if you are interested in applying for an educational bursary for CBT Training. The closing date for applications is Monday 16th November.
 
 

Light a candle for ILFA members

Huge thanks to all the ILFA community near and far who lit candles all over Ireland and overseas in support of lung fibrosis patients and families and to remember loved ones who have passed away.

2020 has been an incredibly difficult year for everyone and it was a very special way to come together, though apart.

We were delighted to have such amazing support for this event. Thank you all!

 

 

Online Pulmonary Rehab class

ILFA's national online pulmonary rehabilitation class will not take place on Monday 26 October as it is a bank holiday. Online classes will start again on Monday 2 November and will take place every Monday at 11am.
 
The classes take place online using Zoom and you will need a tablet device, a smart phone or a laptop/computer. You will receive an email from ILFA with instructions on how to join - you simply have to click the link provided to join the class. Please contact Gemma on 086 871 5264 or email info@ilfa.ie to register to join future classes.
 
In the meantime, you can still exercise from the comfort of your own home with this video recorded by physiotherapy students at University Hospital Limerick https://www.youtube.com/watch?v=FZIwVdmtK1w
 
 
 

Light a candle for ILFA members

Usually in October we have the ILFA Ecumenical Service of Prayer and Reflection to look forward to and we come together as a community. Sadly this year, the service will not take place.
 
On Saturday 24th October, ILFA would like to invite you to light a candle at 6pm in support of patients and their families, and also to remember loved ones with lung fibrosis who have passed away.
 
The time of 6pm (18.00hr) is symbolic as ILFA was founded at this time of year 18 years ago. We hope you will join us. Please share a photo of your candle via our Facebook page or email info@ilfa.ie you would like to.
 
 
 
 
 

"Let's Talk ... Planning for the Future"

"Let's Talk ... Planning for the Future" - an online education session to discuss practical and legal aspects of planning for the future for lung fibrosis patients will take place on Tuesday 3rd November at 4pm.
 
Rebecca Lloyd from the Irish Hospice Foundation will join the meeting and answer your questions.
 
Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie

 

Tip of the week

Hospital Visits

If you have a hospital appointment or tests coming up, try not to be too anxious about visiting the hospital. Rest assured that all safety measures and precautions are in place to ensure your safety and the safety of staff.

A member of the team may contact you in advance of your appointment to see how you are doing, to talk you through the procedures for attending the hospital and to discuss how you will be seen and your tests carried out.Although the timing and way in which things are done has changed, hospitals are open and safe. Remember to wear a face covering, wash your hands, use alcohol hand-gel if necessary and maintain social distancing.

Click here to read more tips from 2020.

 

Inspirational Quote of the Week

"Attitude is a choice. Happiness is a choice. Optimism is a choice. Kindness is a choice. Giving is a choice. Respect is a choice. Whatever choice you make makes you. Choose wisely.” Roy T. Bennett

 

Click here to read more inspirational quotes.

 

Let's Talk Resilience

Let's Talk Resilience - an online education session to discuss resilience and coping strategies for lung fibrosis patients will take place on Tuesday 6th October at 11am.

Dr Jennifer Wilson O'Raghallaigh, Clinical Psychologist at Beaumont Hospital, Dublin will join the meeting and answer your questions.

Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie

 

 

 

Kerry Golf Friendship Challenge

The Kerry Gold Friendship Classis will take place in Beaufort Golf Club in Kerry on Saturday 3rd October with proceeds going to ILFA and the Kerry Hospice Foundation.

All public health measures will be observed.

Huge thanks to Gerry Redican and JP O'Sulllivan of the Kerry IPF SUpport Group for organising this much appreciated fundraiser for ILFA.

 

 

 

Remote Healthcare Consultations

The Covid 19 pandemic has transformed the way medical consultations take place and telephone consultations and video calls are becoming more common.

Remote healthcare offers many advantages as you can speak with a healthcare professional from the comfort and safety of your own home and travel is not required. Family members and carers can be included in the consultation if you wish.

However sometimes, your healthcare team will need a face-to-face consultation to assess your condition fully and sometimes the technology used can be tricky to master. Always ask for help if you need assistance with such consultations.

 

 

ILFA's CBT Educational Bursaries

Congratulations to the recipients of the ILFA educational bursary whi will undertake Cognitive Behaviour Therapy (CBT) training.
Bursaries have been awarded to the following healthcare professionals;
- Paula Ryan, Advanced Nurse Practitioner, University Hospital Limerick
- Julie Goss, Harolds Cross Hospice, Dublin
- Deirdre Garvin, Respiratory Nurse Specialist, Mayo University Hospital, Mayo
- Christina Tobin, Respiratory Physiotherapist, Mallow General Hospital, Cork
- Antoinette Doherty, Clinical Nurse Specialist Respiratory, Letterkenny Hospital, Donegal,
- Catherine McGeoghegan, Respiratory Clinical Nurse Specialist, Beaumont Hospital, Dublin
- Sarah Cuneen, Senior Physiotherapist, Tallaght Hospital Dublin
- Carita Bramhill, Dublin
- Niamh Julian, Respiratory Physiotherapist, University Hospital Limerick
- Lynn Fox, Advanced Nurse Practitioner, Mater University Hospital, Dublin
 
 

Fergus Goodbody Memorial Lecture

ILFA is pleased to announce that registration for the Fergus Goodbody Memorial Lecture on Idiopathic Pulmonary Fibrois in collaboration with the Royal College of Physicians of Ireland is now open for healthcare professionals. The online Masterclass will take place online on 23rd September at 5.30pm.

The invited speakers are;
- Dr Nazia Chaudhuri, Consultant Respiratory Physician, Clinical Lead in ILD, Deputy Clinical Director Respiratory, Manchester University NHS Foundation Trust; Honorary Senior Lecturer, University of Manchester, who will speak on "Management of medication"
- Dr Maria Molina Molina, IDIBELL Bellvitge Biomedical Research Institute, Area Inflammatory, Chronic and Degenerative Diseases, who will speak on "Familial IPF"
- Dr Simon Walsh, Consultant Radiologist, NIHR Clinician Scientist, National Heart and Lung Institute, Imperial College, London, who will speak on "Radiological update on Interstitial Lung Disease"

Let's Talk Breathlessness

Let's Talk Breathlessness - an online session to discuss managing breathlessness for lung fibrosis patients will take place on Monday 7th September at 3pm.

Debbie Gibbons, physiotherapist, St Francis Hospice, Dublin will join the meeting and answer your questions.

Please register and send your questions in advance by calling Gemma on 086 871 5264 or emailing info@ilfa.ie

 

 

Online Pulmonary Rehab for Lung Fibrosis Patients

Pulmonary rehab class: Every Monday a free online pulmonary exercise class for lung fibrosis patients will take place at 11am via Zoom.

The class will be delivered by Niamh Julian (Senior Respiratory Physiotherapist) and Paula Ryan (Advanced Nurse Practitioner) at Limerick University Hospital.

To register to take part, please call Gemma on 086 871 5264 or email info@ilfa.ie

 

 

Let's Talk Lung Transplants

An online education session to discuss lung transplantation for lung fibrosis patients will take place on Wednesday 2nd September at 4pm.

Zita Lawlor, Transplant Coordinator at the Mater Misericordiae University Hospital will join the meeting and answer your questions.

Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie.

 

Online Support Group meeting

ILFA Ireland's next online Support Group Meeting will take place on Tuesday 18 August at 11am.

Join our online tea-party with your favorite cup and a treat, and meet others for a light-hearted chat.

Please register for the meeting in advance by calling Gemma on 086 871 5264 or emailing info@ilfa.ie

 

 

The ILFA Tea Party!

Would you like to organise a tea party for your family and friends to help raise funds for the Irish Lung Fibrosis Association (ILFA)?
 
After all we have been through over the last few months, this will be a wonderful opportunity to make time for tea with the ones you love and have an extra special catch-up. You can organise afternoon tea with all the trimmings, a Zoom/ Skype/Virtual cup of tea online if your pals can’t meet in person, a Teddy Bears Party with the little ones in your life, a Mad Hatters Tea Party with everyone dressing up or a garden party with social distancing. It’s time to get planning - decide on when, where and who will be invited! Your tea party can take place at a time and date that suits you!

We have a limited supply of cake stands available for fundraisers to decorate and there's a chance to win a €50 voucher for the best cake stand. Send us in a photo of your favourite mug, china cup, tea pot,cake stand, home baking etc.! Please call Gemma on 086 871 5264 to get your Tea Party fundraising pack.
Any donation to ILFA would be hugely appreciated. You can donate secuerly to ILFA via
https://give.everydayhero.com/ie/ilfa-tea-party-2020

Let's Talk Pulmonary Function Tests

Let's Talk Pulmonary Function Tests - an online education session to discuss pulmonary function tests for lung fibrosis patients will take place on Tuesday 4th August at 4pm.


Ciaran Heatley, Respiratory Physiologist at the Mater Misericordiae University Hospital will join the meeting and answer your questions.


Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie.

 

 

Educational Bursaries for Cognitive Behavioural Therapy (CBT) Training

Calling all healthcare professionals ... the Irish Lung Fibrosis Association is pleased to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT). The course will be delivered online (September-October) and will require a minimum commitment of 15 hours e-learning & 10 hours participatory (Teams & skills practice) online sessions.
The course will cover;
* CBT theory
* Assessing patients using the CBT model
* Cognitive and behavioural techniques
* Case study practice and presentations

After completing this course, you should be able to:
1. Understand the basics of CBT
2. Understand why CBT is useful for the treatment of depression and anxiety
3. Identify patients under psychological distress
4. Use basic CBT skills and techniques to help address psychological distress.

Please email info@ilfa.ie for an application form if you are interested in applying for an educational bursary for CBT Training.

 

 

The Fergus Goodbody Memorial Lecture 2020

Calling all healthcare professionals ...

ILFA Ireland is pleased to announce that The 2020 Fergus Goodbody Memorial Lecture on Idiopathic Pulmonary Fibrosis for healthcare professionals will take place online on 23 September 2020 from 5.30-6.45pm, in collaboration with the Royal College of Physicians of Ireland (RCPI).

Registration will open in approximately 2 weeks time.

The invited speakers are Dr Maria Molina-Molina from Spain, Dr Nazia Chaudhuri and Dr Simon Walsh from the United Kingdom.

We hope you will join us for a Masterclass Update on Interstitial Lung Disease with global leaders in ILD care.

 

 

YOGA Wellness for Respiratory Patients

The Irish Lung Fibrosis Association, Cystic Fibrosis Ireland and the Asthma Society of Ireland are delighted to announce our Yoga Wellness Session with Michael Darragh Macauley (ILFA patron).

This online wellness initiative for respiratory patients is kindly supported by The Community Foundation for Ireland and Bank of Ireland.

Join us on Thursday 16th July at 1pm via Facebook Live

https://www.facebook.com/ILFAIreland/live_videos/

or join via Zoom

https://zoom.us/webinar/register/WN_fdgsM6HuS4afc4DGjvZtUA

 

 

ILFA Patient Information Day

The next ILFA Patient Information Day will take place on Saturday 11th July at 11am online.

The speakers will be

- Dr Eoin Judge, Respiratory Consultant at Connolly Hospital, Blanchardstown

- Lynn Fox, Respiratory Nurse Specialist at Mater Miseridcordiae University Hospital

- Niamh Julian, Respiratory Physiotherapist at Limerick University Hospital

- Professor Brendan Kelly, Professor of Psychiatry at Trinity College Dublin

- Danny Sheahan, researcher with Invisio Ltd.

 
Please register here in advance to receive your email ticket to this free event that will be brought directly to your home!

When you join the meeting, you will not be seen or heard but you can watch the presentations live and can submit questions. We hope you will join us.

 

Mindfulness for Wellbeing

Join us on Thursday 18th June at 5pm for a Mindfulness Session with Maria Love (Senior Social Worker, Mater Misericordiae Hospital) via Facebook Live at the Asthma Society of Ireland's Facebook page.

This joint event from Cystic fibrosis Ireland, The Asthma Society of Ireland and ILFA and is kindly supported by The Community Foundation for Ireland and Bank of Ireland.

 

New advice for the extremely medically vulnerable

On 8th June Ireland moved to Phase 2 of the roadmap for the easing of Covid-19 restrictions.
New advice for the extremely medically vulnerable (which includes lung fibrosis patients) was released on 5th June and can be read here https://bit.ly/3cRs16y

The HSE also issued new advice for those over 70 or the medically vulnerable.
If you are over 70 or medically vulnerable, please use your judgement to decide how best to apply the following health guidance;
* stay home as much as possible

* you may welcome small numbers of people to your home, but maintain social distancing

* for shopping, please use the times specially allotted by retailers

*if you are visiting someone who is over 70 or medically vulnerable, please be extra vigilant

Please visit www.hse.ie for the most up to date information

 

Respiratory Medicine in the time of Covid19

Thanks to everyone who tuned in to watch "Respiratory Medicine in the time of Covid19" on 4th June.

This webinar was presented by The Asthma Society of Ireland, Cystic Fibrosis Ireland and ILFA with support from The Community Foundation of Ireland and Ban of Ireland.

We are grateful to our speakers; Dr Anne-Marie Russell, Prof Anthony O'Regan, Prof Richard Costello and patient advocates including ILFA Ambassador David Crosby who shared his experience of cocooning.

The webinar is available to watch online at https://bit.ly/2AGT1br

 


Respiratory Medicine During the Time of COVID-19

On Thursday 4th June at 5pm, the Asthma Society of Ireland, Cystic Fibrosis Ireland and the Irish Lung Fibrosis Association, funded through support from the Community Foundation and Bank of Ireland will host a webinar to discuss respiratory medicine during the time of COVID-19.

We invite you to join us for what will be an informative and interactive discussion. Our speaker panel will include perspectives from medical and nursing professionals working on the frontline of COVID-19, as well as patient advocates with experience of respiratory illness.

Speakers :
• Professor Richard Costello
• Professor Anthony O’Regan
• Dr. Anne Marie Russell


Discussion will include a broad respiratory perspective of COVID 19, use of face coverings, behavioral change, virtual health services and how services can reopen safely.

This is a free event and will be hosted on Zoom. Registration is free. &l