News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

NEWS and EVENTS

Coronavirus Disease (COVID-19) - Advice for Patients from ILFA   

Coronavirus Disease (COVID-19) - Advice for patients from the Irish Lung Fibrosis Association

01 April 2020
Please note that some of this information may change as our understanding of Covid-19 increases. For the most up to date information please see www.hse.ie

Covid-19 (Coronavirus) is a new virus that was first identified in December 2019 in Wuhan, China. The family of coronaviruses include viruses that cause ‘colds’ but also some viruses that cause very serious diseases with a high mortality rate like SARS and MERS. As this is a novel (new) virus people do not have any immunity so large numbers of patients are becoming infected in a short period of time. Over the last few weeks the spread of the virus has become a worldwide concern as the number of people who have developed an acute respiratory viral infection and have tested positive for the Covid-19 virus is increasing in many countries including Ireland.

While there is a lot of good, factual, evidence-based information emerging about the new virus, there is also a lot of misinformation in circulation that can lead to heightened anxiety and worry. It is important to use trusted sources of information to inform yourself about the current news and developments relating to Covid-19. Some useful and reliable websites are included below. Here, we hope to provide you with useful information and practical advice to help you stay safe.

Click here to read more about Covid-19 advice for patients from the Irish Lung Fibrosis Association

 

EASTER MONDAY 2000 STEPS CHALLENGE for ILFA

We hope you all know about ILFA Ireland's 2000 Steps A day Exercise Challenge for Lung Fibrosis Patients!

To raise spirits, raise awareness and raise funds, ILFA is setting a STAY AT HOME community challenge for everyone. Patients, families, fundraisers and friends of ILFA can all join in our EASTER MONDAY 2000 STEPS CHALLENGE and make a small donation to ILFA.

If you're cocooning, you can do your 2000 steps in the safety of your home, if you're able to exercise you can do your 2000 steps within the 2km distance from your home while following the HSE advice and social distancing guidelines. If you prefer not to take part, you can donate your Easter egg money online at ILFA by clicking this link. You can donate as little as €3 and all donations are welcome.


Register with Gemma on 086 871 5264 or email info@ilfa.ie to sign up.

 

 

Looking after your wellbeing in times of uncertainty 

Professor Gaye Cunnane, Director of Health and Wellbeing, Royal College of Physicians in Ireland and Professor of Rheumatology, St James’s Hospital and Trinity College Dublin wrote this excellent article for ILFA's Spring 2020 newsletter. 
Click here to read the article. 

 

Oxygen Therapy during the Covid 19 Pandemic

Patricia Davis, Clinical Nurse Specialist - Respiratory Integrated Care (RIC), Community Healthcare East (CHEast), Dublin South/Wicklow discusses oxygen therapy for lung fibrosis patients during the Covid 19 pandemic. Click here to read more. 


ILFA Newsletter Spring 2020

The Spring newsletter is availbale to read here. It will be also be delivered to your home soon if you are on ILFA's mailing list. We worked extra hard to get this edition printed and posted to you before the STAY AT HOME notice was issued. We want to send special thanks to Niamh Hogan (designer) and Ben Brady (printer) who helped make this possible.

The newsletter is jam packed with news and information on how to stay safe during the Covid-19 pandemic, and has reports of meetings and fundraising events that took place before these activities came to a standstill.

We hope you enjoy reading the latest ILFA newsletter. Call Gemma on 086 871 5264 to register with ILFA.

 

Help is at hand from ILFA...

ILFA has received kind offers of help from volunteers around the country to help pick up prescriptions, groceries and messages and also provide a listening ear for ILFA patients who are cocooning.
Please call Gemma on 086 871 5264 if you need help collecting your groceries, prescriptions etc. or even a chat and we will see if we can match you with a 'community hero' or a local volunteer service. You won't need to leave the safety of your home.

 

Get Creative and Share Your Talents!

ILFA Ireland would love for you to get creative during your time of self-isolation and show what resilience and wellbeing means. We know you’re a talented community so why not send us your paintings, sketches, poems, and short stories and we’ll share them on our Facebook and Twitter pages to inspire others. You don’t have to be an acclaimed ‘artiste’ to join in - perhaps this will be your first time to attempt some poetry, a work of art or even a challenging jigsaw!

Visit ILFA's Creative Cocooning Gallery here.

Let’s focus on the positive and try to get through these uncertain times with a bit of creative genius and find the joy in the small and simple things. We look forward to seeing your creations! Email info@ilfa.ie

 

Coronavirus Disease (COVID-19) Updates

Trusted websites for up to date factual information about Covid-19 are

 

Coronavirus Disease (COVID-19) - Advice for Patients from ILFA   

Coronavirus Disease (COVID-19) - Advice for patients from the Irish Lung Fibrosis Association

01 April 2020
Please note that some of this information may change as our understanding of Covid-19 increases. For the most up to date information please see www.hse.ie

Covid-19 (Coronavirus) is a new virus that was first identified in December 2019 in Wuhan, China. The family of coronaviruses include viruses that cause ‘colds’ but also some viruses that cause very serious diseases with a high mortality rate like SARS and MERS. As this is a novel (new) virus people do not have any immunity so large numbers of patients are becoming infected in a short period of time. Over the last few weeks the spread of the virus has become a worldwide concern as the number of people who have developed an acute respiratory viral infection and have tested positive for the Covid-19 virus is increasing in many countries including Ireland.

While there is a lot of good, factual, evidence-based information emerging about the new virus, there is also a lot of misinformation in circulation that can lead to heightened anxiety and worry. It is important to use trusted sources of information to inform yourself about the current news and developments relating to Covid-19. Some useful and reliable websites are included below. Here, we hope to provide you with useful information and practical advice to help you stay safe.

Click here to read more about Covid-19 advice for patients from the Irish Lung Fibrosis Association


Advice on Coronavirus COVID-19

Please visit the HSE website https://www2.hse.ie/conditions/coronavirus/coronavirus.html
for up-to-date information and advice on Coronavirus COVID-19.

Good hand hygiene is essential to protect yourself from all viral infections and the HSE recommends that you wash your hands:
- after coughing or sneezing
- after toilet use
- before eating
- before and after preparing food
- if you are in contact with a sick person, especially those with - respiratory symptoms
- if your hands are dirty
- if you have handled animals or animal waste

 

A message from the Mater Transplant team to our lung transplant recipients

We hope this message finds you all well. We want to acknowledge that we appreciate this is a worrying time for everybody. As your safety is paramount we are cancelling all routine appointments. However we are still here to support you. Our plan is to carry out telephone clinics. If you were due in clinic soon we will be contacting you so we can continue to support you from a transplant perspective and answer any questions you may have. If you have any transplant concerns please call the clinic on 01 803 4296 (Monday - Friday 8am-4pm) or if out of hours ring the transplant ward on 01 803 4322.
We are not always by the phone so please leave a message with a brief reason for your call and we will call you back as soon as we can.
If your call is Covid 19 specific please follow the HSE guidelines/recommendations (www.hse.ie). Contact your GP for a public health care worker to obtain a swab if you are concerned you are showing symptoms.
There are no extra guidelines that are transplant specific and we echo the HSE recommendation to self-isolate, follow strict hand hygiene and avoid contact with anyone who is unwell. Keeping yourself as healthy as possible through diet and exercise is important to maintain overall wellbeing and lung function.
As the situation is evolving on a daily basis we will be staying up to date on advice and will be in touch should current advice change.Take care everyone. Thinking of you all.
The Lung Transplant team.

 

Tip of the week

Relax tense muscle to improve breathlessness
When you become short of breath, the muscles in your shoulders, neck and chest can become tense and use up a lot of energy, making your breathlessness worse.
When you become short of breath, stop what you are doing and find a comfortable position that helps you to take control and breathe easier. Concentrate on relaxing the parts of your body that are tense, for example, unclench your jaw, relax your neck, and let your shoulders relax and drop down

Click here to read more tips from 2020. 

 

Inspirational Quote of the Week

"I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel." Maya Angelou

Click here to read more inspirational quotes.

 

 

ILFA Patient Information Day April 2020 Cancelled

The committee of the Irish Lung Fibrosis Association (ILFA) has decided to cancel the upcoming ILFA Patient Information Day scheduled to take place on Saturday 4 April 2020 in Tullamore Co Offaly.

This decision has been made following the advice of two respiratory consultants, and is in the interest of patient safety given the emergence of Covid-19 in Ireland.

The ILFA committee is enormously grateful to our esteemed speakers for their understanding and full support of the decision to cancel the event. We apologise for any inconvenience caused by taking this precautionary measure.

 

 

VHI Women's Mini-Marathon 2020

Are you thinking of taking part in the 2020 VHI Women's Mini-Marathon on Sunday 31st May?

Please consider joining Team ILFA and fundraising for ILFA to help us continue to support patients and families living with lung fibrosis.

Register online at www.vhiwomensminimarathon.ie and contact Gemma at ILFA on 086 871 5264 or email info@ilfa.ie for a fundraising pack. 

 

 

We need your help ...

The Irish Lung Fibrosis Association (ILFA) is a voluntary charity funded solely by donations and fundraising and does not receive any government funding. We would be delighted if you would nominate ILFA as a potential Charity of the Year to your employer, company, college, sports or social club.

We would be thrilled to work with you and enormously grateful for the opportunity to raise awareness and valuable funds.

Your kindness and generosity help make a real difference. Contact ILFA via info@ilfa.ie or call 086 871 5264 if you require further ifnromation.

 

 

ILFA Christmas cards are now on sale   

ILFA Christmas cards are now available to order.

Each pack contains 10 cards with 2 cards each of 5 festive designs. One pack costs €6 and two packs cost €10.

Please help raise awareness of lung fibrosis this festive season.

Call 086 871 5264 or email info@ilfa.ie to place your order.

 

 

Winter Newsletter   

Click here to read the latest newsletter from the Irish Lung Fibrosis Association.

If you would like to join our mailing list and receive the ILFA newsletters by post, please call ILFA on 086 871 5264 or register online here.

 

 

Santa Dash partners with ILFA!

ILFA is very grateful to the organisers of the 2019 Santa Dash for choosing ILFA as their charity partner for 2019.
 
This great honour helped raise valuable funds and awareness for ILFA. We are indebted to everyone who took part and fundraised for ILFA and also to the incredible ILFA volunteers for thier help running a great event on 1st December. ILFA was delighted to be part of the festive fun and we appreciate all the hard work, energy and enthusiasm that everyone put in to make this a magical day!
 
Our fantastic volunteers were; Yvonne Lynch, Stephen Moody, Eamonn Delaney, Philo Mullaney, Rita Callaghan, Mary Ellen English, Deirdre O'Dwyer, Damien Osborne, Laura Grehan, Teresa Barnett, Patricia Swords, Niamh English, Sean English, Caoimhe English, Louise Houghton, Annette Grehan, Nicola Cassidy and Eddie Cassidy (ILFA Chairman). You're all amazing!!!

 

 

Irish Donor Network Submission to the Joint Oireachtas Commission on Health

On 16th Cotober 2019, members of the Irish Donor Network attended the Joint Oireachtas Health Committee for pre-legislative scrutiny of the Human Tissue Bill which will legislate for the introduction of an opt-out consent system for organ donation. This important provision in the legislation will bring Ireland in line with the rest of Europe.

The Irish Donor Network is made up of 7 patient organisations who support an opt-out consent system for organ donation with additional infrastructure and resources. The patient organisations are Cystic Fibrosis Ireland, the Irish 3Heart & Lung Transplant Association, COPD Support Ireland, Alpha1 Foundation Ireland, Cystinosis Ireland, Childrens Liver Disease Ireland and ILFA.

Read the submission form the Irish Donor Network here.

 

 

 

Tip of the week

Good hand hygiene and clean hands can help protect against infection.
Read this valuable advice from the Mayo Clinic to learn about the 'Do's and Don'ts' of hand washing, understand when to wash your hands, how to properly use hand sanitiser and how to get children into the habit.

https://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/hand-washing/art-20046253

Click here to read more tips from 2020. 

 
 

Inspirational Quote of the Week

“It doesn’t matter who you are, where you come from. The ability to triumph begins with you. Always.”   Oprah Winfrey

Click here to read more inspirational quotes.


 

ILFA receives a commendation award at the Irish Healthcare Awards

Wonderful news !!!

ILFA was thrilled to receive a commendation award for our World Café on Palliative Care and Planning for the Future with Lung Fibrosis, at the Irish Healthcare Awards on 20th November.

This project was shortlisted in the Best Patient Organisation Project of the Year category. The ILFA World Cafe showcased our innovative, dynamic and collaborative work to establish our stakeholders needs, experiences and priorities for palliative care and planning for the future.

ILFA's Yoga DVD for lung fibrosis project was also shortlisted in the Best Patient Lifestyle Project category.

 

 

 

 

 

 

ILFA is funding a Lean White Belt Programme for healthcare professionals

Callng all healthcare professionals …

Do you have an idea that could improve the clinical care and management of pulmonary fibrosis patients at your hospital/clinic?

The Irish Lung Fibrosis Association (ILFA) is delighted to announce a one day course on ‘Lean White Belt Programme’ for healthcare professionals working with pulmonary fibrosis patients. The course will be delivered by two Lean Academy Black Belt Practitioners and will take place at the Mater Hospital in Dublin on8th  January 2020. The Irish Lung Fibrosis Association (ILFA Ireland) is currently seeking expressions of interest from healthcare professionals working with pulmonary fibrosis patients who would like to take part in the programme. ILFA will cover the costs of the course and CPD and CEU points will be awarded to participants.


“The Irish Lung Fibrosis Association is planning to hold a one-day intensive introduction to Lean Six Sigma for Healthcare professionals. This includes nursing, medical and allied health care professionals working in respiratory medicine. It is envisaged that a team will then undertake the professional certificate in Lean Six Sigma and develop an improvement initiative for pulmonary fibrosis patients. This quality improvement initiative may be linked to improving referral times, linking patients in with pulmonary rehab, ensuring patients attend an oxygen clinic or what you think is needed in your area for pulmonary fibrosis patients. For more information, please see the Lean Academy website: www.leanacademy.nmhs.ucd.ie

Please forward your expression of interest to info@ilfa.ie. Places are limited so please apply early. We look forward to hearing from you.

 

 

ILFA Service of Prayer and Reflection

The ILFA Service of Prayer and Reflection will take place on Saturday 12th October at Terenure College Chapel, Terenure, Dublin at 3pm.

The ecumenical service will be celebrated by Reverend Fr Brian McKay (Prior of Terenure College), Reverend Vanessa Wyse-Jackson (retired Minister at Rathgar Methodist Church), and the Reverend Canon Charles Mullen (Dean's Vicar at St Patrick's Cathedral). 

We are thrilled to welcome the Sandymount Gospel Choir and their Muscial Director Cathy McEvoy, as well as Harry Carpendale (harpist) to perform at the ILFA ecumenical service.

All are welcome.

 

 

 

Autumn Newsletter   

Click here to read the latest newsletter from the Irish Lung Fibrosis Association.

If you would like to join our mailing list and receive the ILFA newsletters by post, please call ILFA on 086 871 5264 or register online here.

 

 

 

 

Nelson Gallarin wins the Denise Cassidy Memorial Award for Excellence in Patient Care 

The Irish Lung Fibrosis Association is delighted to announce that Nelson Gallarin, Staff Nurse at the Mater Misericordiae University Hospital, is the winner of the 2019 Denise Cassidy Memorial Award for Excellence in Patient Care.

Nelson was nominated for the award by Peter Gallagher from Dublin for his kindness and compassion when Peter had a difficult night at the Mater Hospital following his lung transplant.

Nelson was thrilled to learn that he was nominated and selected as the overall winner of the award. Nelson will be presented with his award at the ILFA Patient Information Day for Lung Fibrosis in October.

Congratulations Nelson on your well deserved award!

 

ILFA's next Patient Information Day

The next ILFA Patient Information Day will take place on Saturday 19th October from 10am to 2pm at the Crowne Plaza Hotel, Northwood, Santry Dublin.

All are welcome to this free event. 

Our speakers will include;
- Dr Michelle Murray, respiratory consultant at the Mater University Hospital
- Lindsay Brown, respiratory nurse specialist at St Vincent's University Hospital
- Petra Grehan, respiratory physiotherapist at the Mater University Hospital
- Dr Jennifer Wilson O'Raghallaigh, clinical psychologist at Beaumont Hospital
- Professor Bernard Mahon, Biology Department at Maynooth University
- Carita Bramhill, research coordinator at St Vincent's University Hospital
- Sonia Morrison, Air Liquide Healthcare
- Adrian Sheehan, BOC Healthcare Ireland

We hope you can join us to learn more about pulmonary fibrosis.

 

 

ILFA's World Cafe on Palliative Care and Planning for the Future

In June 2018, the Irish Lung Fibrosis Association (ILFA) held its first meeting on Palliative Care and Planning for the Future with our stakeholders. The aim of the meeting was to explore the palliative care and future care planning needs of people with pulmonary fibrosis (lung fibrosis), and to share ideas on how best to address these needs. The meeting was facilitated by Anne-Marie Russell and Tony Shone. Adopting a ‘World Café’ approach patients, family members, healthcare professionals working in hospitals, hospices and community settings, representatives from the clergy, the Irish Hospice Foundation, and pharmaceutical and oxygen companies contributed to the discussions. 

The topics discussed were;

(1) Practical planning for living with Idiopathic Pulmonary Fibrosis (IPF)

(2) Palliative care needs and management of symptoms

(3) End of life considerations including home, hospital and hospice care at the end-of-life, and spirituality needs

(4) Psychological needs and support for living with IPF

(5) Acute exacerbations and transplantation concerns

(6) Legal matters

After the meeting, a report was produced and shared with the participants to get their input and incorporate their feedback. The aim of this report is to share with you the information that was discussed at the meeting and steps we have taken since the event. You can read the report here.

 

Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study   

Three pulmonary fibrosis groups in Ireland contributed to this important research paper entitled 'Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study' that was recently published in the European Respiratory Journal Open Research.

We are grateful to everyone from the Dublin, Kerry and Midland Support Groups for taking part in focus group discussions and sharing thier perspectives on a range of topics relating to living with pulmonary fibrosis. 

Click here to read the full paper.

  

 

Research Funding 

The Irish Lung Fibrosis Association (ILFA Ireland) is pleased to announce funding of €20,000 for research into Idiopathic Pulmonary Fibrosis (IPF). Healthcare professionals and scientists working in respiratory medicine in Ireland are invited to submit a Research Bursary Application Form by 28th June 2019.

For more information, please contact Gemma on 086 871 5264 or email info@ilfa

 

VHI Women's Mini Marathon

The VHI Women's Mini-Marathon will take place in Dublin on Sunday 2nd June 2019.

Team ILFA will meet at 12.30pm at the Mespil Hotel, Mespil Road, Dublin by the canal, in advance of the mini-marathon, for a group photo.

We will leave for the start line at 12.50pm sharp.

After the mini-marathon we will meet upstairs in the Duke Pub on Duke Street, just off Grafton Street (beside the side entrance of Marks and Spencers) for tea/coffee and sandwiches.

We look forward to seeing you all.

 

 

Cork City Marathon relay event 2019

The Cork City Marathon team relay event will take place on Sunday 2nd June and we're so excited!!! ILFA has six teams taking part and we're delighted to introduce them to you with short pieces written by the team captains.

Team ILFA 1 was put together to raise awareness of the pulmonary fibrosis patient's journey. The team members are the inspirational David Crosby who was diagnosed with Idiopathic Pulmonary Fibrosis and received a double lung transplant in 2016. David has since completed 3 full marathons, New York City Marathon, Berlin Marathon and London Marathon and has his sights set on Tokyo, Boston and Chicage to join the 'Super Six' marathon club. Joining David for the Cork marathon relay event are his respiratory consultant - Dr Oisin O'Connell, his respiratory nurse specialist - Lynn Fox, his transplant surgeon - Professor David Healy and ILFA volunteer - Nicola Cassidy.

Click here to read more ...

  

Publication of the Human Tissue Bill

2/5/2019 Statement from the Irish Lung Fibrosis Association

The Irish Lung Fibrosis Association (ILFA), the national charity supporting patients diagnosed with idiopathic pulmonary fibrosis (IPF), welcomes the introduction of a soft opt-out organ donation system in Ireland.

IPF is a rare, chronic, progressive, and debilitating lung disease of unknown cause that results in irreversible scarring of the lungs and low oxygen levels. A lung transplant is the only effective treatment for IPF, but this is not a suitable option for everyone.

ILFA has campaigned for an opt-out organ donation system for many years and we are optimistic that this important legislation will change peoples’ lives going forward. In 2008, ILFA’s late patron Senator Feargal Quinn, wrote a Bill entitled the 'Human Body Organs and Human Tissue Bill'. Feargal firmly believed that an opt out organ donation system would have the potential to increase the number of organ donors and life saving transplant operations that could be carried out. ILFA would like to pay tribute to and acknowledge the great contribution of our dear friend and patron Feargal Quinn as the Human Tissue Bill is published.

ILFA will continue to campaign for
• additional resources, infrastructure and staff to support
• organ donation, organ retrieval and transplantation services at the national transplant centres
• an ongoing, well-resourced and inclusive public awareness campaign to educate society and individuals of the importance of discussions on organ donation and the opt-out consent system.
• dedicated resources to provide optimal standards of care for patients undergoing pre-transplant assessment and those requiring post-transplant care.

Sincere thanks to the Minister for Health Simon Harris TD, Department of Health Officials, ODTI and HSE staff for their work progressing the Human Tissue Bill.
#organdonationsaveslives

 

 

Rest in peace Feargal Quinn   

The Irish Lung Fibrosis Association is sad to inform you that our esteemed patron Feargal Quinn has passed away.  

Feargal was a patron of ILFA for many years and we were honoured to know and work closely with him. Feargal was a true gentleman and was deeply committed to his ILFA role; he helped launch ILFA’s 2000 Steps a Day Exercise Programme and ‘The National Patient Charter for Idiopathic Pulmonary Fibrosis’, he also appeared in the ILFA exercise DVD and encouraged patients to stay motivated and determined, he participated in ILFA's ecumenical service of prayer and reflection, and he attended a number of ILFA’s Patient Information Days and spoke at the events.

In 2008, Senator Feargal Quinn wrote the 'Human Body Organs and Human Tissue Bill' and ILFA Ireland looks forward to the introduction of the opt-out organ donation system soon. This will be a great and fitting legacy to Feargal’s tremendous advocacy work.


Feargal radiated a special warmth and great kindness and he was always eager to engage with the ILFA committee and patients and learn about their experiences. We have lost a wonderful friend and patron. Please remember Feargal and his family in your thoughts and prayers.


May he rest in peace.

 

Namaste! 
ILFA's new Yoga Exercise DVD for People with Lung Fibrosis

ILFA’s patron, Michael Darragh Macauley, Dublin GAA footballer and yoga instructor, kindly helped us produce a yoga exercise DVD for people with lung fibrosis.

Yoga can provide health benefits to people with lung fibrosis through improved breathing, relaxation, and improvements in mobility and flexibility. There are two levels of exercises featured which are suitable for beginners and those who feel they can progress to a more advanced stage.

Michael Darragh said “In the video we go through a series of exercises that can help people manage their health and cope with the challenges of living with the condition. The great thing is that the exercises can be done whether seated or standing and can be adapted to suit each individual’s abilities. People can go at their own pace and no one gets left behind.”

You can watch the video online here, on ILFA’s YouTube channel and you can order your own copy from ILFA. Please call 086 871 5264 or email info@ilfa to order a DVD.  
 
This patient resource has been made possible with the kind support of Three Lakes Partners. Sincere thanks to Michael Darragh Macauley, Matt Cullen, Pamela Martin and Evelyn Cooper for taking part in the Yoga DVD. We hope you enjoy this new patient resource. 
 

 

 

The 2019 Denise Cassidy Memorial Prize for Excellence in Healthcare

"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around" - Leo Buscaglia

Would you like to honour your lung fibrosis healthcare hero?   

ILFA is excited to announce the 2019 Denise Cassidy Memorial Prize for excellence in healthcare. This award recognises and celebrates the kindness, compassion and humanity of a hospital healthcare worker to a lung fibrosis patient or their family. Patients and carers are invited to nominate a person who showed you or your loved one a special act of kindness that helped you cope with your illness better.

Please fill out the nomination form below and tell us why your healthcare hero deserves to be honoured. You can nominate a doctor, nurse, physiotherapist, social worker, counsellor, dietician, pharmacist, healthcare assistant, member of the chaplaincy team, clerical worker, catering or cleaning staff - in fact anyone who works in a hospital. Everyone who is nominated will receive a certificate of excellence and the overall winner will receive a special commemorative Dublin crystal award.

The award is named in honour of Denise Cassidy who was diagnosed with IPF at the age of 56. Denise led a happy, busy, healthy, sporty and active life. She loved badminton, running, walking, gardening and socialising. Her symptoms developed out of the blue and she developed increasing breathlessness and a cough. After many difficult and frustrating months of hospital admissions, Denise was eventually diagnosed with IPF and placed on the lung transplant list. During her illness, Denise met many kind, friendly, caring, and dedicated healthcare staff and other lung fibrosis patients who helped and supported her enormously. Denise passed away in 2006.

Denise's husband Eddie and daughter Nicola have served on the ILFA committee since 2007. Denise's immediate and extended family have continuously fundraised for ILFA and all are honoured and humbled to have this special award dedicated to her memory.

Let's get behind our lung fibrosis healthcare heroes and celebrate their great work!

Please send your entries to ILFA, PO Box 10456, Blackrock, Co Dublin or email info@ilfa.ie. The closing date for entries is the end of May, 2019.

Click here to download the nomination form.

 

ILFA Bursaries for Respiratory Nurses and Allied Healthcare Professionals

ILFA is pleased to announce that six bursaries (each worth €500) will be made available to respiratory nurses and allied healthcare professionals in Ireland to attend the Interstitial Lung Disease Inter-Disciplinary Network (ILD-INN) conference in Birmingham, England on 14th and 15th October 2019.

For more information on the conference please visit www.ild-inn.org.uk

What will the bursary cover?

The bursaries will contribute towards the cost of the conference registration including one night’s accommodation and dinner, and travel to and from the United Kingdom.

How to apply for an ILFA bursary?

Respiratory Nurses and Allied healthcare professionals working in respiratory medicine can apply for a bursary by completing the application form and returning it to info@ilfa.ie by 30th May. Please call Gemma on 086 871 5264 if you have any queries.

The winners will be announced by mid-July and the successful applicants will be notified shortly thereafter. The winners are responsible for organising their own travel and registering with the ILD-INN conference.

Click here to download the application form.

 

Spring Newsletter   

Click here to read the latest newsletter from the Irish Lung Fibrosis Association.

If you would like to join our mailing list and receive the ILFA newsletters by post, please call ILFA on 086 871 5264 or register online here.

 

 

 

 


 

Cork City Marathon Team Relay Event - ILFA needs YOU!

Would you like to take part in the Cork City Marathon ILFA Team Relay event?

Teams of 2-5 people can run or walk the 42km distance on Sunday 2nd June, 2019. 

ILFA Ireland has a number of teams signing up to help raise awareness of lung fibrosis and fundraise for a worthy cause.

The good news is that everyone will receive a medal and gets to experience the 'marathon buzz' as part of Team ILFA.

Our enthusiastic and motivated group includes patients, carers, family members, healthcare professionals and industry representatives who are all running to make a difference.

Contact ILFA on 086 871 5264 or email info@ilfa.ie for more information. 

Donate online via https://cork-city-marathon-2019.everydayhero.com/…/ILFATeam…

 

 

 

Patient Information Day on Palliative Care and Planning for the Future

The Irish Lung Fibrosis Association will host an information day on Palliative Care and Planning for the Future for Lung Fibrosis.

Date: Saturday 6th April 2019

Venue: Hilton Airport Hotel, Northern Cross, Malahide Road, Dublin.

Time: 10am-1pm

Topics will include symptom management, practical support, end-of-life preferences, psychological support, acute exacerbations, lung transplantation and legal advice for patients with lung fibrosis. Speakers will include healthcare professionals working in respiratory medicine, palliative care and the Irish Hospice Foundation.

All are welcome to this free event.

To register, please call 086 871 5264 or email info@ilfa.ie 

 

'The irony of lung fibrosis: a fibroblast to treat IPF'

Professor Luis Ortiz, a leading clinician scientist at University of Pittsburg Medical Centre, will deliver a free educational lecture entitled 'The irony of lung fibrosis: a fibroblast to treat IPF' on Wednesday 13th March at 7pm. To register please call ILFA on 086 871 5264 or