News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

NEWS and EVENTS

 

Online Pulmonary Rehab class

ILFA's national online pulmonary rehabilitation class will not take place on Monday 26 October as it is a bank holiday. Online classes will start again on Monday 2 November and will take place every Monday at 11am. 
 
The classes take place online using Zoom and you will need a tablet device, a smart phone or a laptop/computer. You will receive an email from ILFA with instructions on how to join - you simply have to click the link provided to join the class. Please contact Gemma on 086 871 5264 or email info@ilfa.ie to register to join future classes.
 
In the meantime, you can still exercise from the comfort of your own home with this video recorded by physiotherapy students at University Hospital Limerick  https://www.youtube.com/watch?v=FZIwVdmtK1w
 
 
 

Light a candle for ILFA members

Usually in October we have the ILFA Ecumenical Service of Prayer and Reflection to look forward to and we come together as a community. Sadly this year, the service will not take place.
 
On Saturday 24th October, ILFA would like to invite you to light a candle at 6pm in support of patients and their families, and also to remember loved ones with lung fibrosis who have passed away.
 
The time of 6pm (18.00hr) is symbolic as ILFA was founded at this time of year 18 years ago. We hope you will join us. Please share a photo of your candle via our Facebook page or email info@ilfa.ie you would like to.
 
 
 
 
 

"Let's Talk ... Planning for the Future"

"Let's Talk ... Planning for the Future" - an online education session to discuss practical and legal aspects of planning for the future for lung fibrosis patients will take place on Tuesday 3rd November at 4pm.
 
Rebecca Lloyd from the Irish Hospice Foundation will join the meeting and answer your questions.
 
Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie

 

Tip of the week

Hospital Visits

If you have a hospital appointment or tests coming up, try not to be too anxious about visiting the hospital. Rest assured that all safety measures and precautions are in place to ensure your safety and the safety of staff.

A member of the team may contact you in advance of your appointment to see how you are doing, to talk you through the procedures for attending the hospital and to discuss how you will be seen and your tests carried out.Although the timing and way in which things are done has changed, hospitals are open and safe. Remember to wear a face covering, wash your hands, use alcohol hand-gel if necessary and maintain social distancing.

Click here to read more tips from 2020. 

 

Inspirational Quote of the Week

"Attitude is a choice. Happiness is a choice. Optimism is a choice. Kindness is a choice. Giving is a choice. Respect is a choice. Whatever choice you make makes you. Choose wisely.”  Roy T. Bennett

 

Click here to read more inspirational quotes.

 

Let's Talk Resilience 

Let's Talk Resilience - an online education session to discuss resilience and coping strategies for lung fibrosis patients will take place on Tuesday 6th October at 11am.

Dr Jennifer Wilson O'Raghallaigh, Clinical Psychologist at Beaumont Hospital, Dublin will join the meeting and answer your questions.

Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie

 

 

 

Kerry Golf Friendship Challenge

The Kerry Gold Friendship Classis will take place in Beaufort Golf Club in Kerry on Saturday 3rd October with proceeds going to ILFA and the Kerry Hospice Foundation.

All public health measures will be observed.

Huge thanks to Gerry Redican and JP O'Sulllivan of the Kerry IPF SUpport Group for organising this much appreciated fundraiser for ILFA.

 

 

 

Remote Healthcare Consultations

The Covid 19 pandemic has transformed the way medical consultations take place and telephone consultations and video calls are becoming more common.

Remote healthcare offers many advantages as you can speak with a healthcare professional from the comfort and safety of your own home and travel is not required. Family members and carers can be included in the consultation if you wish.

However sometimes, your healthcare team will need a face-to-face consultation to assess your condition fully and sometimes the technology used can be tricky to master. Always ask for help if you need assistance with such consultations.

 

 

ILFA's CBT Educational Bursaries

Congratulations to the recipients of the ILFA educational bursary whi will undertake Cognitive Behaviour Therapy (CBT) training.
Bursaries have been awarded to the following healthcare professionals;
- Paula Ryan, Advanced Nurse Practitioner, University Hospital Limerick
- Julie Goss, Harolds Cross Hospice, Dublin
- Deirdre Garvin, Respiratory Nurse Specialist, Mayo University Hospital, Mayo
- Christina Tobin, Respiratory Physiotherapist, Mallow General Hospital, Cork
- Antoinette Doherty, Clinical Nurse Specialist Respiratory, Letterkenny Hospital, Donegal,
- Catherine McGeoghegan, Respiratory Clinical Nurse Specialist, Beaumont Hospital, Dublin
- Sarah Cuneen, Senior Physiotherapist, Tallaght Hospital Dublin
- Carita Bramhill, Dublin
- Niamh Julian, Respiratory Physiotherapist, University Hospital Limerick
- Lynn Fox, Advanced Nurse Practitioner, Mater University Hospital, Dublin
 
 
 

Fergus Goodbody Memorial Lecture 

ILFA is pleased to announce that registration for the Fergus Goodbody Memorial Lecture on Idiopathic Pulmonary Fibrois in collaboration with the Royal College of Physicians of Ireland is now open for healthcare professionals. The online Masterclass will take place online on 23rd September at 5.30pm.

The invited speakers are;
- Dr Nazia Chaudhuri, Consultant Respiratory Physician, Clinical Lead in ILD, Deputy Clinical Director Respiratory, Manchester University NHS Foundation Trust; Honorary Senior Lecturer, University of Manchester, who will speak on "Management of medication"
- Dr Maria Molina Molina, IDIBELL Bellvitge Biomedical Research Institute, Area Inflammatory, Chronic and Degenerative Diseases, who will speak on "Familial IPF"
- Dr Simon Walsh, Consultant Radiologist, NIHR Clinician Scientist, National Heart and Lung Institute, Imperial College, London, who will speak on "Radiological update on Interstitial Lung Disease"

 

Let's Talk Breathlessness

Let's Talk Breathlessness - an online session to discuss managing breathlessness for lung fibrosis patients will take place on Monday 7th September at 3pm.

Debbie Gibbons, physiotherapist, St Francis Hospice, Dublin will join the meeting and answer your questions.

Please register and send your questions in advance by calling Gemma on 086 871 5264 or emailing info@ilfa.ie

 

 
 

Online Pulmonary Rehab for Lung Fibrosis Patients

Pulmonary rehab class: Every Monday a free online pulmonary exercise class for lung fibrosis patients will take place at 11am via Zoom.

The class will be delivered by Niamh Julian (Senior Respiratory Physiotherapist) and Paula Ryan (Advanced Nurse Practitioner) at Limerick University Hospital. 

To register to take part, please call Gemma on 086 871 5264 or email info@ilfa.ie

 

 

Let's Talk Lung Transplants

An online education session to discuss lung transplantation for lung fibrosis patients will take place on Wednesday 2nd September at 4pm.

Zita Lawlor, Transplant Coordinator at the Mater Misericordiae University Hospital will join the meeting and answer your questions.

Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie.

 

 

Online Support Group meeting

ILFA Ireland's next online Support Group Meeting will take place on Tuesday 18 August at 11am.

Join our online tea-party with your favorite cup and a treat, and meet others for a light-hearted chat.

Please register for the meeting in advance by calling Gemma on 086 871 5264 or emailing info@ilfa.ie

 

 
 

The ILFA Tea Party! 

Would you like to organise a tea party for your family and friends to help raise funds for the Irish Lung Fibrosis Association (ILFA)?
 
After all we have been through over the last few months, this will be a wonderful opportunity to make time for tea with the ones you love and have an extra special catch-up. You can organise afternoon tea with all the trimmings, a Zoom/ Skype/Virtual cup of tea online if your pals can’t meet in person, a Teddy Bears Party with the little ones in your life, a Mad Hatters Tea Party with everyone dressing up or a garden party with social distancing. It’s time to get planning - decide on when, where and who will be invited! Your tea party can take place at a time and date that suits you!

We have a limited supply of cake stands available for fundraisers to decorate and there's a chance to win a €50 voucher for the best cake stand. Send us in a photo of your favourite mug, china cup, tea pot,cake stand, home baking etc.! Please call Gemma on 086 871 5264 to get your Tea Party fundraising pack.
 
Any donation to ILFA would be hugely appreciated. You can donate secuerly to ILFA via 
https://give.everydayhero.com/ie/ilfa-tea-party-2020
 
 
 
 

Let's Talk Pulmonary Function Tests 

Let's Talk Pulmonary Function Tests - an online education session to discuss pulmonary function tests for lung fibrosis patients will take place on Tuesday 4th August at 4pm.


Ciaran Heatley, Respiratory Physiologist at the Mater Misericordiae University Hospital will join the meeting and answer your questions.


Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie.

 

 
 
 

Educational Bursaries for Cognitive Behavioural Therapy (CBT) Training 

Calling all healthcare professionals ... the Irish Lung Fibrosis Association is pleased to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT). The course will be delivered online (September-October) and will require a minimum commitment of 15 hours e-learning & 10 hours participatory (Teams & skills practice) online sessions.
The course will cover;
* CBT theory
* Assessing patients using the CBT model
* Cognitive and behavioural techniques
* Case study practice and presentations

After completing this course, you should be able to:
1. Understand the basics of CBT
2. Understand why CBT is useful for the treatment of depression and anxiety
3. Identify patients under psychological distress
4. Use basic CBT skills and techniques to help address psychological distress.

Please email info@ilfa.ie for an application form if you are interested in applying for an educational bursary for CBT Training.

 

 

The Fergus Goodbody Memorial Lecture 2020

Calling all healthcare professionals ...

ILFA Ireland is pleased to announce that The 2020 Fergus Goodbody Memorial Lecture on Idiopathic Pulmonary Fibrosis for healthcare professionals will take place online on 23 September 2020 from 5.30-6.45pm, in collaboration with the Royal College of Physicians of Ireland (RCPI).

Registration will open in approximately 2 weeks time.

The invited speakers are Dr Maria Molina-Molina from Spain, Dr Nazia Chaudhuri and Dr Simon Walsh from the United Kingdom.

 We hope you will join us for a Masterclass Update on Interstitial Lung Disease with global leaders in ILD care.

 

 

YOGA Wellness for Respiratory Patients  

The Irish Lung Fibrosis Association, Cystic Fibrosis Ireland and the Asthma Society of Ireland are delighted to announce our Yoga Wellness Session with Michael Darragh Macauley (ILFA patron).

This online wellness initiative for respiratory patients is kindly supported by The Community Foundation for Ireland and Bank of Ireland.

Join us on Thursday 16th July at 1pm via Facebook Live

https://www.facebook.com/ILFAIreland/live_videos/

or join via Zoom 

https://zoom.us/webinar/register/WN_fdgsM6HuS4afc4DGjvZtUA

 

 

ILFA Patient Information Day  

The next ILFA Patient Information Day will take place on Saturday 11th July at 11am online.
 

The speakers will be 

- Dr Eoin Judge, Respiratory Consultant at Connolly Hospital, Blanchardstown

- Lynn Fox, Respiratory Nurse Specialist at Mater Miseridcordiae University Hospital

- Niamh Julian, Respiratory Physiotherapist at Limerick University Hospital

- Professor Brendan Kelly, Professor of Psychiatry at Trinity College Dublin

- Danny Sheahan, researcher with Invisio Ltd.

 
Please register here in advance to receive your email ticket to this free event that will be brought directly to your home!

When you join the meeting, you will not be seen or heard but you can watch the presentations live and can submit questions. We hope you will join us.

 

Mindfulness for Wellbeing 

Join us on Thursday 18th June at 5pm for a Mindfulness Session with Maria Love (Senior Social Worker, Mater Misericordiae Hospital) via Facebook Live at the Asthma Society of Ireland's Facebook page. 

This joint event from Cystic fibrosis Ireland, The Asthma Society of Ireland and ILFA and is kindly supported by The Community Foundation for Ireland and Bank of Ireland. 

 

New advice for the extremely medically vulnerable

On 8th June Ireland moved to Phase 2 of the roadmap for the easing of Covid-19 restrictions.
New advice for the extremely medically vulnerable (which includes lung fibrosis patients) was released on 5th June and can be read here https://bit.ly/3cRs16y

The HSE also issued new advice for those over 70 or the medically vulnerable.
If you are over 70 or medically vulnerable, please use your judgement to decide how best to apply the following health guidance;
* stay home as much as possible

* you may welcome small numbers of people to your home, but maintain social distancing

* for shopping, please use the times specially allotted by retailers

*if you are visiting someone who is over 70 or medically vulnerable, please be extra vigilant

Please visit www.hse.ie for the most up to date information

 

Respiratory Medicine in the time of Covid19

Thanks to everyone who tuned in to watch "Respiratory Medicine in the time of Covid19" on 4th June.

This webinar was presented by The Asthma Society of Ireland, Cystic Fibrosis Ireland and ILFA with support from The Community Foundation of Ireland and Ban of Ireland.

We are grateful to our speakers; Dr Anne-Marie Russell, Prof Anthony O'Regan, Prof Richard Costello and patient advocates including ILFA Ambassador David Crosby who shared his experience of cocooning.

The webinar is available to watch online at https://bit.ly/2AGT1br

 


Respiratory Medicine During the Time of COVID-19

On Thursday 4th June at 5pm, the Asthma Society of Ireland, Cystic Fibrosis Ireland and the Irish Lung Fibrosis Association, funded through support from the Community Foundation and Bank of Ireland will host a webinar to discuss respiratory medicine during the time of COVID-19.

We invite you to join us for what will be an informative and interactive discussion. Our speaker panel will include perspectives from medical and nursing professionals working on the frontline of COVID-19, as well as patient advocates with experience of respiratory illness.

Speakers :
• Professor Richard Costello
• Professor Anthony O’Regan
• Dr. Anne Marie Russell


Discussion will include a broad respiratory perspective of COVID 19, use of face coverings, behavioral change, virtual health services and how services can reopen safely.

This is a free event and will be hosted on Zoom. Registration is free. https://us02web.zoom.us/webinar/register/WN_Y0w59pI8R7-m2lXoLSxxhA

There will be a Q&A session at the end of the webinar. If you have any questions that you would like to ask our guest speakers, please include them on your registration form and we will do our best to get them answered.

Please note that by joining this webinar, you are accepting that the webinar is being recorded. Your information will be held in compliance with GDPR and will not be shared outside of the webinar partner organisations i.e Asthma Society of Ireland, Cystic Fibrosis Ireland and the Irish Lung Fibrosis Association.

 

 

Online activities for ILFA members

ILFA is using the online platform Zoom to keep connected with members around the country and provide wellbeing activities.

Everyone wishing to join an online meeting should register in advance by calling Gemma on 086 871 5264 or emailing info@ilfa.ie. A secure link to join the online class/meeting will be sent directly to you. We hope you will join us!

 

Pulmonary rehab class: Every Monday a free online pulmonary exercise class for lung fibrosis patients will take place at 11am. The class will be delivered by Niamh Julian (Senior Respiratory Physiotherapist) and Paula Ryan (Advanced Nurse Practitioner) at Limerick University Hospital. 

Yoga: An online yoga class for lung fibrosis patients and carers with ILFA's patron Michael Darragh Macauley takes place weekly. The next class will be on Thursday 16th July at 1.00pm. 

Support Groups: A number of online national support group meetings have taken place in recent months. Contact Gemma if you would like to join the next support group meeting. 

 

ILFA Survey to establish the Health Impact of COVID-19 on our members

Thank you to everyone who took part in our survey. The survey is now closed.

We had a great response and will share the results with you as soon as possible. 

 

Lung Fibrosis recognised as an extremely medically vulnerable condition in the updated COVID-19 Guidance on cocooning 

The Irish Lung Fibrosis Association (ILFA), respiratory consultants, and the Irish Thoracic Society campaigned to have pulmonary fibrosis / lung fibrosis / interstitial lung disease formally recognised as an extremely medically vulnerable condition for cocooning. We are happy to report that the guidelines were updated on 24th April and we are grateful to the HSE, Department of Health, Health Protection Surveillance Centre and the Minister for Health for listening to our concerns. 

Covid-19 guidance for extremely medically vulnerable groups

 

ILFA's Covid-19 Health & Wellbeing Hub 

Visit the new ILFA website Covid-19 Health & Wellbeing Hub here

This page has advice specifically for lung fibrosis patients as well as videos of ILFA's exercise resources to help you keep active and important HSE advice and useful video resources.

For up to date information please visit www.hse.ie for accurate and trusted information. 

 

Coronavirus Disease (COVID-19) - Advice for Patients from ILFA   

Coronavirus Disease (COVID-19) - Advice for patients from the Irish Lung Fibrosis Association

01 April 2020
Please note that some of this information may change as our understanding of Covid-19 increases. For the most up to date information please see www.hse.ie

Covid-19 (Coronavirus) is a new virus that was first identified in December 2019 in Wuhan, China. The family of coronaviruses include viruses that cause ‘colds’ but also some viruses that cause very serious diseases with a high mortality rate like SARS and MERS. As this is a novel (new) virus people do not have any immunity so large numbers of patients are becoming infected in a short period of time. Over the last few weeks the spread of the virus has become a worldwide concern as the number of people who have developed an acute respiratory viral infection and have tested positive for the Covid-19 virus is increasing in many countries including Ireland.

While there is a lot of good, factual, evidence-based information emerging about the new virus, there is also a lot of misinformation in circulation that can lead to heightened anxiety and worry. It is important to use trusted sources of information to inform yourself about the current news and developments relating to Covid-19. Some useful and reliable websites are included below. Here, we hope to provide you with useful information and practical advice to help you stay safe.

Click here to read more about Covid-19 advice for patients from the Irish Lung Fibrosis Association

 

EASTER MONDAY 2000 STEPS CHALLENGE for ILFA

We hope you all know about ILFA Ireland's 2000 Steps A day Exercise Challenge for Lung Fibrosis Patients!

To raise spirits, raise awareness and raise funds, ILFA is setting a STAY AT HOME community challenge for everyone. Patients, families, fundraisers and friends of ILFA can all join in our EASTER MONDAY 2000 STEPS CHALLENGE and make a small donation to ILFA.

If you're cocooning, you can do your 2000 steps in the safety of your home, if you're able to exercise you can do your 2000 steps within the 2km distance from your home while following the HSE advice and social distancing guidelines. If you prefer not to take part, you can donate your Easter egg money online at ILFA by clicking this link. You can donate as little as €3 and all donations are welcome.


Register with Gemma on 086 871 5264 or email info@ilfa.ie to sign up.

 

 

Looking after your wellbeing in times of uncertainty 

Professor Gaye Cunnane, Director of Health and Wellbeing, Royal College of Physicians in Ireland and Professor of Rheumatology, St James’s Hospital and Trinity College Dublin wrote this excellent article for ILFA's Spring 2020 newsletter. 
Click here to read the article. 

 

Oxygen Therapy during the Covid 19 Pandemic

Patricia Davis, Clinical Nurse Specialist - Respiratory Integrated Care (RIC), Community Healthcare East (CHEast), Dublin South/Wicklow discusses oxygen therapy for lung fibrosis patients during the Covid 19 pandemic. Click here to read more. 


ILFA Newsletter Spring 2020

The Spring newsletter is availbale to read here. It will be also be delivered to your home soon if you are on ILFA's mailing list. We worked extra hard to get this edition printed and posted to you before the STAY AT HOME notice was issued. We want to send special thanks to Niamh Hogan (designer) and Ben Brady (printer) who helped make this possible.

The newsletter is jam packed with news and information on how to stay safe during the Covid-19 pandemic, and has reports of meetings and fundraising events that took place before these activities came to a standstill.

We hope you enjoy reading the latest ILFA newsletter. Call Gemma on 086 871 5264 to register with ILFA.

 

Help is at hand from ILFA...

ILFA has received kind offers of help from volunteers around the country to help pick up prescriptions, groceries and messages and also provide a listening ear for ILFA patients who are cocooning.
Please call Gemma on 086 871 5264 if you need help collecting your groceries, prescriptions etc. or even a chat and we will see if we can match you with a 'community hero' or a local volunteer service. You won't need to leave the safety of your home.

 

Get Creative and Share Your Talents!

ILFA Ireland would love for you to get creative during your time of self-isolation and show what resilience and wellbeing means. We know you’re a talented community so why not send us your paintings, sketches, poems, and short stories and we’ll share them on our Facebook and Twitter pages to inspire others. You don’t have to be an acclaimed ‘artiste’ to join in - perhaps this will be your first time to attempt some poetry, a work of art or even a challenging jigsaw!

Visit ILFA's Creative Cocooning Gallery here.

Let’s focus on the positive and try to get through these uncertain times with a bit of creative genius and find the joy in the small and simple things. We look forward to seeing your creations! Email info@ilfa.ie

 

Coronavirus Disease (COVID-19) Updates

Trusted websites for up to date factual information about Covid-19 are

 

Coronavirus Disease (COVID-19) - Advice for Patients from ILFA   

Coronavirus Disease (COVID-19) - Advice for patients from the Irish Lung Fibrosis Association

01 April 2020
Please note that some of this information may change as our understanding of Covid-19 increases. For the most up to date information please see www.hse.ie

Covid-19 (Coronavirus) is a new virus that was first identified in December 2019 in Wuhan, China. The family of coronaviruses include viruses that cause ‘colds’ but also some viruses that cause very serious diseases with a high mortality rate like SARS and MERS. As this is a novel (new) virus people do not have any immunity so large numbers of patients are becoming infected in a short period of time. Over the last few weeks the spread of the virus has become a worldwide concern as the number of people who have developed an acute respiratory viral infection and have tested positive for the Covid-19 virus is increasing in many countries including Ireland.

While there is a lot of good, factual, evidence-based information emerging about the new virus, there is also a lot of misinformation in circulation that can lead to heightened anxiety and worry. It is important to use trusted sources of information to inform yourself about the current news and developments relating to Covid-19. Some useful and reliable websites are included below. Here, we hope to provide you with useful information and practical advice to help you stay safe.

Click here to read more about Covid-19 advice for patients from the Irish Lung Fibrosis Association


Advice on Coronavirus COVID-19

Please visit the HSE website https://www2.hse.ie/conditions/coronavirus/coronavirus.html
for up-to-date information and advice on Coronavirus COVID-19.

Good hand hygiene is essential to protect yourself from all viral infections and the HSE recommends that you wash your hands:
- after coughing or sneezing
- after toilet use
- before eating
- before and after preparing food
- if you are in contact with a sick person, especially those with - respiratory symptoms
- if your hands are dirty
- if you have handled animals or animal waste

 

A message from the Mater Transplant team to our lung transplant recipients

We hope this message finds you all well. We want to acknowledge that we appreciate this is a worrying time for everybody. As your safety is paramount we are cancelling all routine appointments. However we are still here to support you. Our plan is to carry out telephone clinics. If you were due in clinic soon we will be contacting you so we can continue to support you from a transplant perspective and answer any questions you may have. If you have any transplant concerns please call the clinic on 01 803 4296 (Monday - Friday 8am-4pm) or if out of hours ring the transplant ward on 01 803 4322.
We are not always by the phone so please leave a message with a brief reason for your call and we will call you back as soon as we can.
If your call is Covid 19 specific please follow the HSE guidelines/recommendations (www.hse.ie). Contact your GP for a public health care worker to obtain a swab if you are concerned you are showing symptoms.
There are no extra guidelines that are transplant specific and we echo the HSE recommendation to self-isolate, follow strict hand hygiene and avoid contact with anyone who is unwell. Keeping yourself as healthy as possible through diet and exercise is important to maintain overall wellbeing and lung function.
As the situation is evolving on a daily basis we will be staying up to date on advice and will be in touch should current advice change.Take care everyone. Thinking of you all.
The Lung Transplant team.

 

 

ILFA Patient Information Day April 2020 Cancelled

The committee of the Irish Lung Fibrosis Association (ILFA) has decided to cancel the upcoming ILFA Patient Information Day scheduled to take place on Saturday 4 April 2020 in Tullamore Co Offaly.

This decision has been made following the advice of two respiratory consultants, and is in the interest of patient safety given the emergence of Covid-19 in Ireland.

The ILFA committee is enormously grateful to our esteemed speakers for their understanding and full support of the decision to cancel the event. We apologise for any inconvenience caused by taking this precautionary measure.

 

 

VHI Women's Mini-Marathon 2020

Are you thinking of taking part in the 2020 VHI Women's Mini-Marathon on Sunday 31st May?

Please consider joining Team ILFA and fundraising for ILFA to help us continue to support patients and families living with lung fibrosis.

Register online at www.vhiwomensminimarathon.ie and contact Gemma at ILFA on 086 871 5264 or email info@ilfa.ie for a fundraising pack. 

 

 

We need your help ...

The Irish Lung Fibrosis Association (ILFA) is a voluntary charity funded solely by donations and fundraising and does not receive any government funding. We would be delighted if you would nominate ILFA as a potential Charity of the Year to your employer, company, college, sports or social club.

We would be thrilled to work with you and enormously grateful for the opportunity to raise awareness and valuable funds.

Your kindness and generosity help make a real difference. Contact ILFA via info@ilfa.ie or call 086 871 5264 if you require further ifnromation.

 

 

ILFA Christmas cards are now on sale   

ILFA Christmas cards are now available to order.

Each pack contains 10 cards with 2 cards each of 5 festive designs. One pack costs €6 and two packs cost €10.

Please help raise awareness of lung fibrosis this festive season.

Call 086 871 5264 or email info@ilfa.ie to place your order.

 

 

Winter Newsletter   

Click here to read the latest newsletter from the Irish Lung Fibrosis Association.

If you would like to join our mailing list and receive the ILFA newsletters by post, please call ILFA on 086 871 5264 or register online here.

 

 

Santa Dash partners with ILFA!

ILFA is very grateful to the organisers of the 2019 Santa Dash for choosing ILFA as their charity partner for 2019.
 
This great honour helped raise valuable funds and awareness for ILFA. We are indebted to everyone who took part and fundraised for ILFA and also to the incredible ILFA volunteers for thier help running a great event on 1st December. ILFA was delighted to be part of the festive fun and we appreciate all the hard work, energy and enthusiasm that everyone put in to make this a magical day!
 
Our fantastic volunteers were; Yvonne Lynch, Stephen Moody, Eamonn Delaney, Philo Mullaney, Rita Callaghan, Mary Ellen English, Deirdre O'Dwyer, Damien Osborne, Laura Grehan, Teresa Barnett, Patricia Swords, Niamh English, Sean English, Caoimhe English, Louise Houghton, Annette Grehan, Nicola Cassidy and Eddie Cassidy (ILFA Chairman). You're all amazing!!!

 

 

Irish Donor Network Submission to the Joint Oireachtas Commission on Health

On 16th Cotober 2019, members of the Irish Donor Network attended the Joint Oireachtas Health Committee for pre-legislative scrutiny of the Human Tissue Bill which will legislate for the introduction of an opt-out consent system for organ donation. This important provision in the legislation will bring Ireland in line with the rest of Europe.

The Irish Donor Network is made up of 7 patient organisations who support an opt-out consent system for organ donation with additional infrastructure and resources. The patient organisations are Cystic Fibrosis Ireland, the Irish 3Heart & Lung Transplant Association, COPD Support Ireland, Alpha1 Foundation Ireland, Cystinosis Ireland, Childrens Liver Disease Ireland and ILFA.

Read the submission form the Irish Donor Network here.

 

 

 

Tip of the week

Good hand hygiene and clean hands can help protect against infection.
Re