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Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

Welcome to the ILFA website

The Irish Lung Fibrosis Association (ILFA)

The Irish Lung Fibrosis Association (ILFA) s the national patient organisation for lung fibrosis. ILFA was founded in November 2002 to support patients and families living with Idiopathic Pulmonary Fibrosis (IPF), and to provide education and support to respiratory healthcare professionals.

IPF is a progressive lung condition where fibrosis or scarring causes the alveoli (air sacs) in the lungs to thicken and harden. The fibrosis or scarring interfers with the normal transfer of oxygen from the alveoli to the blood stream and results in low oxygen levels in the blood and shortness of breath. The word 'Idiopathic' means 'unknown' - the cause for IPF has not been identified yet.

It is estimated that approximatley 400 patients are diagnosed with IPF in Ireland every year and approximately 1,200 patients are living with the condition.


Irish Lung Fibrosis Association (ILFA)

Registered charity number 20053437

Company registration number 367940

Charitable exemption number CHY 15462


News and Events

Please click here to visit our News and Events section which contains all the latest news, events and stories from the Irish Lung Fibrosis Association (ILFA).

ILFA on Facebook

Please click here to visit our Facebook page. 

 

Donate to ILFA

If you would like to make a donation to the Irish Lung Fibrosis Association, please click the link below to find out the different ways by which you can donate. 

Thank you for your kindness and support. 

Donate to ILFA

 

ILFA'S Information Resources

Please click here to access our Patient Information materials, educational videos and practical resources.

 

Coronavirus Disease (COVID-19) Updates

Trusted websites for up to date factual information about Covid-19 are

 
Please visit our News and Events Section for current news and updates

 

 

The National Patient Charter for Idiopathic Pulmonary Fibrosis

The National Patient Charter for IPF was launched on 6th October 2015 as part of IPF World Week

ILFA developed the National Patient Charter to support IPF patients and their families, empower them to look for best treatment and give them a clear expectation of the standard of care they should receive.  The charter was developed with the input of IPF patients and carers, health care professionals and professional respiratory organisations. The National Patient Charter for IPF identifies six key areas needed to ensure IPF patients get the best level of care.  

Click here to read the full charter

 

 

Irish Thoracic Society Position Statement on the Management of Idiopathic Pulmonary Fibrosis  

Please click here to read the 2018 Position Statement from the Irish Thoracic Society (ITS) on the Management of IPF that was launched on 31st August 2018 at the Royal College of Physicians of Ireland. 

The ITS Position Statement;

  • provides guidance to healthcare professionals on the optimal pathways for the diagnosis and management for IPF
  • is aimed at policy and decision makers in the Health Service Executive (HSE) and outlines the resources necessary to provide fair and equal access to standards of care needed for all IPF patients
  • will empower patients and families to look for the best care
 
 

ILFA information resources for newly diagnosed patients  

Click on the link above to visit our patient information resource page.

Alternatively click on the titles below to download the leaflets, email info@ilfa.ie or call 086 871 5264 to request a Patient Information Pack with all of our printed materials.

1) What is Pulmonary Fibrosis?

2) The treatment of Idiopathic Pulmonary Fibrosis

3) Oxygen and Idiopathic Pulmonary Fibrosis

4) Telemedicine: Phone and Video Consultations

5) Getting the most out of your hospital appointments: Advice for IPF patients

6) Advice for carers of people with Idiopathic Pulmonary Fibrosis

7) Weight Management and Nutrition for Pulmonary Fibrosis

8) Get moving with ILFA (leaflet). ILFA 2000 Steps a Day Challenge

9) Click here to read more about The ILFA 2000 Steps a Day walking pack

10) STALL Breathing Technique Card from ILFA

11) ILFA Medical Alert Card

12) ILFA Join us! Get involved!

13) Managing Breathlessness - Advice for Lung Fibrosis Patients

14) Patient Information Day Videos

15) ILFA Exercise DVD for Lung Fibrosis Patients

16) ILFA Yoga DVD for Lung Fibrosis Patients

17) ILFA World Cafe report on Palliative Care for Idiopathic Pulmonary Fibrosis (2018)

 

 

ILFA 2000 Steps a Day Exercise Programme for Lung Fibrosis Patients

 

Patient Information Day Videos

 Please visit the ILFA YouTube Channel to watch the ILFA Patient Information Day videos, exercise and yoga videos.

 

Patient Support Groups

If you have been diagnosed with lung fibrosis or idiopathic pulmonary fibrosis (IPF), you may be feeling scared, lost and lonely. You have probably never heard of this condition before. If you would like to meet people who are also diagnosed with lung fibrosis and find out how they are managing their health, why not come along to a support group?
There are a number of support groups around the country that meet once a month. All are welcome to attend the meetings.

Click here for more details and contact numbers. 


 

Aims of the Irish Lung Fibrosis Association

Support, education and research

Patients diagnosed with Lung Fibrosis face many challenges. ILFA supports patients and families by providing information about the condition and the services available to them. ILFA aims to increase public awareness about Lung Fibrosis and to educate healthcare professionals about the condition and the needs of patients. We promote and support research into Lung Fibrosis.

 

We hope you find our website useful.

If you need further information or if you have any comments regarding our website, we would love to hear from you. 

Please click here to contact us.

 

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