Research Education Support
Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA support group where you live.
You can decide what level of involvement you would like to have. If you are interested in getting more involved, ILFA would like to hear from you.
You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264
The Irish Lung Fibrosis Association (ILFA) s the national patient organisation for lung fibrosis. ILFA was founded in November 2002 to support patients and families living with Idiopathic Pulmonary Fibrosis (IPF), and to provide education and support to respiratory healthcare professionals.
IPF is a progressive lung condition where fibrosis or scarring causes the alveoli (air sacs) in the lungs to thicken and harden. The fibrosis or scarring interfers with the normal transfer of oxygen from the alveoli to the blood stream and results in low oxygen levels in the blood and shortness of breath. The word 'Idiopathic' means 'unknown' - the cause for IPF has not been identified yet.
It is estimated that approximatley 400 patients are diagnosed with IPF in Ireland every year and approximately 1,200 patients are living with the condition.
Irish Lung Fibrosis Association (ILFA)
Registered charity number 20053437
Company registration number 367940
Charitable exemption number CHY 15462
Please click here to visit our News and Events section which contains all the latest news, events and stories from the Irish Lung Fibrosis Association (ILFA).
Please click here to visit our Facebook page.
If you would like to make a donation to the Irish Lung Fibrosis Association, please click the link below to find out the different ways by which you can donate.
Thank you for your kindness and support.
Please click here to access our Patient Information materials, educational videos and practical resources.
Trusted websites for up to date factual information about Covid-19 are
Health Service Executive (HSE) www.hse.ie
Health Protection Surveillance Centre www.hpsc.ie
Department of Health www.gov.ie
World Health Organisation www.who.net
European Centre for Disease Prevention and Control www.ecdc.europa.eu
The National Patient Charter for IPF was launched on 6th October 2015 as part of IPF World Week
ILFA developed the National Patient Charter to support IPF patients and their families, empower them to look for best treatment and give them a clear expectation of the standard of care they should receive. The charter was developed with the input of IPF patients and carers, health care professionals and professional respiratory organisations. The National Patient Charter for IPF identifies six key areas needed to ensure IPF patients get the best level of care.
Click here to read the full charter
Please click here to read the 2018 Position Statement from the Irish Thoracic Society (ITS) on the Management of IPF that was launched on 31st August 2018 at the Royal College of Physicians of Ireland.
The ITS Position Statement;
Click on the link above to visit our patient information resource page.
Alternatively click on the titles below to download the leaflets, email info@ilfa.ie or call 086 871 5264 to request a Patient Information Pack with all of our printed materials.
1) What is Pulmonary Fibrosis?
2) The treatment of Idiopathic Pulmonary Fibrosis
3) Oxygen and Idiopathic Pulmonary Fibrosis
4) Telemedicine: Phone and Video Consultations
5) Getting the most out of your hospital appointments: Advice for IPF patients
6) Advice for carers of people with Idiopathic Pulmonary Fibrosis
7) Weight Management and Nutrition for Pulmonary Fibrosis
8) Get moving with ILFA (leaflet). ILFA 2000 Steps a Day Challenge
9) Click here to read more about The ILFA 2000 Steps a Day walking pack
10) STALL Breathing Technique Card from ILFA
12) ILFA Join us! Get involved!
13) Managing Breathlessness - Advice for Lung Fibrosis Patients
14) Patient Information Day Videos
15) ILFA Exercise DVD for Lung Fibrosis Patients
16) ILFA Yoga DVD for Lung Fibrosis Patients
17) ILFA World Cafe report on Palliative Care for Idiopathic Pulmonary Fibrosis (2018)
Please visit the ILFA YouTube Channel to watch the ILFA Patient Information Day videos, exercise and yoga videos.
If you have been diagnosed with lung fibrosis or idiopathic pulmonary fibrosis (IPF), you may be feeling scared, lost and lonely. You have probably never heard of this condition before. If you would like to meet people who are also diagnosed with lung fibrosis and find out how they are managing their health, why not come along to a support group?
There are a number of support groups around the country that meet once a month. All are welcome to attend the meetings.
Click here for more details and contact numbers.
Patients diagnosed with Lung Fibrosis face many challenges. ILFA supports patients and families by providing information about the condition and the services available to them. ILFA aims to increase public awareness about Lung Fibrosis and to educate healthcare professionals about the condition and the needs of patients. We promote and support research into Lung Fibrosis.
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