News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA branch where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

Tip of the week 2018

 

1) Keep a diary for 2018
Happy New Year from ILFA! If you're thinking about a new year’s resolution, why not commit to keeping a diary for 2018? A diary is very useful for recording all your appointments, correspondence, and things you need to do. Its also worthwhile to keep a record of your general health and wellbeing. Write down how you’re feeling, your symptoms and how you are coping with your daily challenges and triumphs including your progress with taking exercise and reaching your daily step count.

2) Have a plan in place
Speak with your healthcare team to decide what actions you should take if you feel unwell in the future. Having a formal health care plan in place means that you and your family will know what you need to do and who to contact when you feel unwel

3) Balance your energy levels
Fatigue and extreme tiredness are common symptoms for many patients with lung fibrosis. Tiredness can affect your energy levels and ability to carry out your daily activities. Try to balance your activities and energy levels by planning ahead, doing things at your own pace, taking a short rest when needed, and prioritising the things that are important to you and those you really want to do.

4) Relax your muscles to help your breathing
When you become short of breath, the muscles in your
shoulders, neck and chest can become tense and use up a lot of energy, making your breathless worse.
When you become short of breath, stop what you are doing and find a comfortable position that helps you to take control and breathe easier. Concentrate on relaxing the parts of your body that are tense, for example, unclench your jaw, relax your neck, and let your shoulders relax and drop down.

5) Using oxygen while bathing
Showering and getting dressed can be very tiring activities for people with lung fibrosis. If you are on oxygen, don't be afraid to use it while showering or bathing. If necessary, turn your oxygen up to help you cope with extra breathlessness when washing and changing. Once your breathing has settled, turn your oxygen back to its normal level. 

6) Ready and able
If you have a job to do, that you simply can't face today, why not put it off until tomorrow. Don't stress about it, instead put it out of your mind and tackle it when you are ready and feel up to the task. 

7) Cleaning your nasal cannulae
If you are on oxygen, it is important to clean your nasal cannulae daily with a damp cloth. You should not use kitchen wipes or baby wipes as they contain chemicals that can affect the tubing. You should replace your nasal prongs every month or when they become dry and hard, and after a respiratory infection. Contact your oxygen supply company if you have any questions.

8)  Fatigue
Fatigue is common and debilitating symptom for patients with IPF. Fatigue is caused by a combination of factors including low oxygen saturations, low iron concentrations, low blood sugar, low haemoglobin levels in your blood and poor thyroid function. Ask you doctor to check your bloods if you suffer with fatigue.