News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA branch where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

Tip of the week 2017

 

1) Keep a diary for 2017
Happy New Year! If you're thinking about a new year’s resolution, why not commit to start a diary for 2017? A diary is very useful for recording all your appointments, correspondence, and things you need to do. Its also worthwhile to keep a record of your general health and wellbeing. Write down how you’re feeling, your symptoms and how you are coping with your daily challenges and triumphs including your progress with taking exercise.

2)  Choose happiness! Smile and laugh as often as you can even when life is difficult. These simple acts release feel-good chemicals that will help you feel better about life. Good humour and smiles are contagious and will help you connect with others!

3) Plain English
Always ask your doctor and other healthcare professionals to use 'plain English' if they use medical terms or words that you do not understand.
Click the link to read more about some of the medical terms that are used in the management of lung fibrosis.
http://www.ilfa.ie/lung_fibrosis_faq.asp#3012

4) Contact numbers in case of emergency

Prepare a list of all your emergency contact telephone numbers including your family contacts, GP surgery, local hospital, pharmacy and your oxygen supply company. Keep this list somewhere prominent and easy to find in your home. Its also a good idea to keep a copy of the list in your wallet , purse and oxygen carry case, and give copy to your spouse, partner or companion.
 
5)  Pulse oximeter readings
I
PF causes patients to become breathless and have low blood oxygen levels, especially during exercise or any activity that requires effort (exertion).
If your GP is going to measure your blood oxygen levels (with a machine called a pulse oximeter), you should march on the spot for a while or walk up and down the corridor before the reading is taken. If you have been sitting in the waiting room, your pulse oximter reading will only reflect your resting state and there may not be a significant change in oxygen levels.
It is more important and useful to have a reading that accurately reflects how your body reacts to exertion. Don't be afraid to tell your doctor this.
 
6)  Exercise, exercise, exercise
Exercise is as important as medication. As well as following your doctor’s instructions when taking medicine, you should prioritise exercise. Daily exercise will help to keep your muscles strong and your lungs working to the best of their capacity. The ILFA 2000 Steps a Day exercise challenge and Exercise DVD are designed specifically for lung fibrosis patients taking their limitations into account. Email info@ilfa.ie or call 086 871 5264 to request your exercise pack

 7)  Prioritise tasks 
Be flexible and realistic with your time. Prioritise the most important tasks. Make a “To Do” list and group similar activities together, for example, telephone calls, paying your bills, attending to letters and correspondence. You'll feel better when you see the progress you make as you tick these items off your list.

8) Palliative care
Don't be afraid if your doctor or nurse asks to discuss palliative care with you if your health is getting worse. Palliative care is a medical specialty that focuses on relieving your symptoms, particularly breathlessness and anxiety. Palliative care is often wrongly associated with caring only for cancer patients at the‘end of life’. In fact, palliative care can be useful at any time for IPF patients and can help improve your symptoms, well being and quality of life as IPF progresses.

9)  Take 5 minutes for yourself
During the day, take 5-10 minutes of quiet quality time for yourself. Sit in a comfortable chair or lie on your bed and concentrate on your breathing and relax. When you feel refreshed, get up and carry on with your day.