News and Upcoming Events 

 

 

Would You Like To Become More Involved With ILFA?

Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA branch where you live.

You can decide what level of involvement you would like to have. If you are interested in getting more involved ILFA would like to hear from you.

You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or by calling 086 871 5264

FUNDRAISING FACTSHEET FOR THE

IRISH LUNG FIBROSIS ASSOCIATION

  • ILFA was established in 2002 in memory of Fergus Goodbody. Our committee is made up of volunteers who have all been touched by Lung Fibrosis in some way. Our patrons are Brian O’Driscoll, Charlie Bird, Senator Feargal Quinn, and Andrea Corr.  Our exercise Ambassador is Dublin GAA star, Michael Darragh Macauley.
  • The aims of ILFA are Research, Education, and Support. 
  • All of our finance comes from fundraising by our supporters. All money raised goes towards meeting our aims and helping the patients and families of those affected by Lung Fibrosis. 
  • ILFA aims to hold two Patient Information Days annually. Invited speakers give presentations to patients and their families about the medical, social, and practical aspects of living with Lung Fibrosis. The Patient Information Days are a valuable opportunity for patients with Lung Fibrosis and their families to meet with each other. Light refreshments are provided for those in attendance.
  • The Inaugural Fergus Goodbody Lecture was held in 2010 and an international expert in Respiratory Medicine was invited to Dublin to present a lecture on recent advances in Lung Fibrosis to medical, nursing, and research staff. It is envisaged that this will become a regular event for ILFA every 2 years. 
  • ILFA produces several publications including the biannual ILFA Newsletter, the Directory of Services for Lung Fibrosis, and Patient Information Leaflets. 
  • In 2011, ILFA commissioned a questionnaire on the preferred donor transplant options (i.e. an opt-out system or an opt-in-system) of members of the public. 
  • In 2013 ILFA launched the 2000 Steps Day Exercise programme for IPF patients. Patients are provided with a free walking pack to encourage them to sign up to the programme. 
  • ILFA appointed a part-time Development and Management Officer in 2014.
  • Other funds go toward the upkeep and management of the website www.ilfa.ie 
  • ILFA engage the services of a PR company when required.
  • ILFA are registered with www.mycharity.ie for on-line donations and this involves an annual charge.  
  • ILFA supply merchandise including t-shirts, vests, and balloons to fundraisers. 
  • Day-to-day running costs include telephone bills, postage, printing costs, insurance, and sundries.