NEWS & EVENTS
Information Day
ILFA's next patient Information Day will take place on Saturday, 10 April, 2010, in the Education and Research Centre, St. Vincent's Hospital, Dublin, from 10.00am to 12.30pm.
Professor Jim Egan, Respiratory Consultant with the Mater Heart and Lung Unit, will talk about the medical aspects of IPF, including transplantation, and the practical aspects of living with the condition will also be addressed.
The meeting will finish with a Question and Answer Session.
Patients, their families and friends and carers are all invited to attend.
Bazaar
The International Women's Committee Dublin are holding a Bazaar in the Stillorgan Park Hotel, Stillorgan, Co. Dublin on Tuesday, 9 March from 10.00 to 12.00 and in doing so will be raising funds for ILFA. Stalls will range from second hand books in different languages to jewellery to baked goods and jams. The Bazaar is open to all and the entrance fee is two euro.
New appointment
ILFA is pleased to announce the appointment of LORNA MURPHY as Pulmonary Fibrosis Nurse Specialist and Research Co-ordinator.
Lorna, who is attached to Professor Jim Egan's team in the Mater Hospital in Dublin, will be a point of contact for patients and their families providing support and advice on all aspects of their illness.
Lorna will also be assisting with the on-going research that is being undertaken into new and more effective treatments for lung fibrosis.
Lorna can be contacted at 01-7166391 or at 086 8715264.
Trekking Kilimanjaro
Congratulations to Lorna who successfully completed her climb of Kilimanjaro for ILFA in January.
Lorna's sponsorship page is still open- if you would like to add to her sponsorhip you can do so by going to her mycharity page
Flora Women's Mini-Marathon 2010
The 2010 Flora Women's Mini-Marathon will take place on Monday, 7 June, at 3pm. As usual the 10K route will start and finish at St. Stephen's Green, Dublin. Entry forms are available in the Evening Herald on Wednesdays and Saturdays from 3 March or on-line at www.womensminimarathon.ie The closing date for entries is 27 April, or before that if the maximum number of entries is reached.
ILFA would like to invite you, your family, friends and colleagues to join our WMM fundraising team which this year will be led by Lorna.
We can provide you with T-shirts, sponsorship cards, balloons and plenty of support as well as the usual fun day out!
Please contact ILFA for your fundraising pack or phone Nicola at 086 0570310.
Wicklow 200K Cycle
For those of you who are not eligible for the Women's Mini-Marathon, or if you prefer a faster mode of exercise, the countdown is on to the Wicklow 200K Cycle which will take place on Sunday, 13 June, 2010.
This year the cycle will start and finish in Greystones, Co. Wicklow an the route will largely be the same as the 2009 route.
Once again Professor Jim Egan and a team of cyclists will take on this challenge to raise funds for ILFA. You can encourage them with your sponsorship by contacting ILFA or phoning us at 086 8715264 or 086 0570310.
ARE YOU LIVING IN THE UK?
A small group of IPF sufferers and supporters are trying to set up a new association to promote awareness of this disease and to try to drive forward new research initiatives. They are looking for supporters and anyone who can help them.
"People with the disease have a poor prognosis, a very diminished quality of life and there is not even proven effective medication," says Margaret Zeir, an IPF sufferer from Wales."It is a sadly neglected area and people are dying as a result. We are only a small group of people and lack clout and experience but we are passionately determined to try and improve things."
If you think you could help please contact Margaret at margaret.zier@googlemail.com
ILFA NEWSLETTER
To view ILFA's most recent Newsletter electronically Click here .
Alternatively, contact ILFA for a hard copy of the newsletter.
UPCOMING EVENTS
ILFA INFORMATION DAY - Saturday, 10 April, Education and Research Centre, St. Vincent's Hospital, Dublin
WOMEN'S MINI-MARATHON - Monday, 7 June at 3pm
WICKLOW 200K CYCLE - Sunday, 13 June
Please contact us if you have any upcoming events that you would like posted on the ILFA website.