News & Upcoming Events
- Approval of the Drug Pirfenidone for the treatment of mild to moderate pulmonary fibrosis.
- Cork Meeting Group
Thank You & Well Done to all the Ladies who took part in this years Mini-Marathon!
Would You Like To Become More Involved With ILFA?
Perhaps you could do a once-off fundraising event such as a coffee morning or maybe you would be interested in setting up a local ILFA branch where you live. You can decide what level of involvement you would like to have. If you are interested in getting more involved ILFA would like to hear from you. You can contact us via post @ PO Box 10456, Blackrock, County Dublin; via email @ info@ilfa.ie or via phone @ 086 8715264.
About Us
History of the Irish Lung Fibrosis Association
ILFA was founded in 2002 to honour the memory of Fergus Goodbody who died from Lung Fibrosis. ILFA was set up by Nicky Goodbody, Terence Moran, Marie Sheridan, and Professor Jim Egan. The primary aims of the Irish Lung Fibrosis Association are to provide a source of information and support to people with the condition and to provide funding for research and the development of new treatments for Lung Fibrosis.
ILFA is funded solely by donations and the fundraising efforts of our supporters are vitally important for the continued existence of our research and education programmes. ILFA will celebrate its 10th year in 2012 and hope to markt he occassion with a series of events.
Postal address: ILFA, PO Box 10456, Blackrock, Co. Dublin.
Registered address : 158 Seamount, Stillorgan Road, Booterstown, Co. Dublin.
Directors: Prof Jim Egan, Marie Sheridan, Terence Moran, Nicola Goodbody and Mary O'Connor.
Company registration no. 367940
Charitable exemption number CHY 15462
Commitee
The ILFA committee is made up of a small number of volunteers who have all been touched in some way by Lung Fibrosis.
Our current committee members are Terence Moran (Chairman), Mary O’Connor (Secretary), Eddie Cassidy (Treasurer), Professor Jim Egan, Nicky Goodbody (nee Figgis), Nicola Cassidy, Claire Tunissen and Sancha Mulcahy.
The ILFA committee is also assisted by a number of representatives nationwide; Dave Mulcahy (Cork representative), Lorraine Ryan (Limerick Representative), Collette McGowan (Leitrim representative), Joanne Coyle (Cavan representative), and Helen Durney (Kildare representative).
The Dublin based committee members meet once a month in Rathmines, Dublin. Other local representatives based around the country provide local input to the committee from their home county. We would be delighted to hear from you if you would be interested in joining the ILFA committee or becoming a local representative. Please contact ILFA or write to ILFA at PO Box 10456, Blackrock, Co. Dublin.
Click here to read more about the work of the committee.
All our finance comes from fundraising activities. To learn more visit our Fundraising pages.
Click here to read about how funds are spent by ILFA.
Our patrons
ILFA are lucky to have three well known and hugely popular patrons associated with our charity. We are grateful to our patrons for their continued support.
Senator Feargal Quinn is probably best known as the founder of Superquinn. He was also Chairman of An Post for ten years during which the National Lottery was launched. More recently Senator Quinn has appeared on TV. "Feargal Quinn’s Retail Therapy" was highly rated and was followed by a series called "Local Heroes – A Town Fights Back" which followed the transformation of Drogheda town. Since 1993, he has been an independent member of the Seanad and in 2008 he introduced the Human Body Organ and Human Tissue Bill in which he proposed a change in the organ donation system from an opt-in to an opt-out system. Senator Quinn continues to raise this matter regularly in the Seanad. In 2011, Seantor Quinn accompanied a delegation from ILFA who met with the Minister for health Dr. James Reilly, T.D.
Charlie Bird is a well known and hugely popular public figure. He was the Chief News Correspondent and the Washington Correspondent for RTÉ News and has presented a series of nature documentaries for RTÉ when he traveled to the Amazon, the Ganges and the Artic. Charlie became ILFA patron in 2007 and was present at the Patient Open Day in April 2008 where he officially launched the ILFA "Directory of Services".
"I was delighted to be asked to launch the Directory of Services for ILFA. It is great to see how important a self-help group like ILFA is in getting things done. I would also like to acknowledge Professor Jim Egan and all the medical staff in the Mater Hospital for their work and dedication to helping people with IPF."
Brian O’Driscoll is one of the worlds most respected and admired professional Rugby Players. Brian is Captain of the Irish Rugby team and has been ILFA patron since 2003. Brian has an outstanding sporting record; he captained Ireland to 32 victories between 2002-2008; he led Ireland to victory in the Triple Crown in 2006 & again in 2007; he captained the Lions team in 2005 and now he has captained the the Irish team which won the Grand Slam, 2009.