About Us

History of the Irish Lung Fibrosis Association

ILFA was founded in 2002 to honour the memory of Fergus Goodbody who died from Lung Fibrosis. ILFA was set up by Nicky Goodbody, Terence Moran, Marie Sheridan, and Professor Jim Egan. The primary aims of the Irish Lung Fibrosis Association are to provide a source of information and support to people with the condition and to provide funding for research and the development of new treatments for Lung Fibrosis.

ILFA is funded solely by donations and the fundraising efforts of our supporters are vitally important for the continued existence of our research and education programmes. In our six years of operation our supporters have raised over € 350,000 to help in the battle against IPF, for which we are very grateful.

Postal address: ILFA, PO Box 10456, Blackrock, Co. Dublin.

Registered address : 158 Seamount, Stillorgan Road, Booterstown, Co. Dublin.
Directors: Prof Jim Egan, Marie Sheridan, Terence Moran, Nicola Goodbody and Mary O'Connor.
Company registration no. 367940
Charitable exemption number CHY 15462

Commitee

The ILFA committee is made up of a small number of volunteers who have all been touched in some way by Lung Fibrosis.

Our current committee members are Terence Moran (Chairman), Mary O’Connor (Secretary), Marie Sheridan (Treasurer), Professor Jim Egan, Nicky Goodbody (nee Figgis), Eddie Cassidy, Nicola Cassidy, Joanne Coyle (Cavan representative), and Helen Durney (Kildare representative).

The Dublin based committee members meet once a month in Monkstown, Dublin. Other local representatives based in Kildare and Cavan provide local input to the committee from their home county. We would be delighted to hear from you if you would be interested in joining the ILFA committee or becoming a local representative. Please contact ILFA or write to ILFA at PO Box 10456, Blackrock, Co. Dublin.

Our patrons

ILFA are lucky to have two well known and hugely popular patrons associated with our charity. We are grateful to our patrons for their continued support.

Charlie Bird is the Washington Correspondent for RTÉ News and is a hugely popular public figure. Charlie became ILFA patron in 2007 and was present at the Patient Open Day in April 2008 where he officially launched the ILFA “Directory of Services”.

“I was delighted to be asked to launch the Directory of Services for ILFA. It is great to see how important a self-help group like ILFA is in getting things done. I would also like to acknowledge Professor Jim Egan and all the medical staff in the Mater Hospital for their work and dedication to helping people with IPF.”

Brian O’Driscoll is one of the worlds most respected and admired professional Rugby Players. Brian is Captain of the Irish Rugby team and has been ILFA patron since 2003. Brian has an outstanding sporting record; he captained Ireland to 32 victories between 2002-2008; he led Ireland to victory in the Triple Crown in 2006 & again in 2007; he captained the Lions team in 2005 and now he has captained the the Irish team which won the Grand Slam, 2009.

ILFA wishes to congratulate Brian and the Ireland team on winning the Grand Slam in Cardiff. Well done!